Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-22-2012, 10:49 AM #1
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Default RSD on Dr Oz show TODAY w Paula Abdul

The show airs on WCIV at 5pm. The is supposedly in remission and is going to talk of her past struggles with RSD. This is amazing since she has been so shy about admitting it in the past due to the pain med issue. Hope it is good!! Enjoy!! If you miss it, it may be available on the Dr Oz show website tonight or tomorrow.
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Old 05-22-2012, 03:20 PM #2
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Just saw the Dr. Oz show and the Paula Abdul interview. I give Dr. Oz credit for having health shows that are more "out of the box" and cover more non-conventional medical problems than the other cookie cutter shows. He is also bringing more light to natural and complementary therapies, some of which have really helped me with my CRPS.

Dr. Oz did have a model of the body and illustrated (kind of) what happens with the nervous system when you have CRPS (they called it RSD).

They didn't spend a lot of time on it; 10-12 minutes maybe but at least it's a start at more awareness of this condition.

I honestly have found nobody other than doctors (and not even all of them) that know what this darn thing is!!
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Old 05-22-2012, 03:46 PM #3
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Wow you two beat me to it. I was just getting online to tell everyone that Dr. Oz has Paula Abdul on about her rsd in her neck/arm. She looks great and is doing so much better than she ever has. I was glad to see her talking about it (finally). I am glad she was able to use her star power to bring attention to what rsd is.

On a VERY positive note---I was healed of rsd Friday night at a Christian miracle service (after 7 years+ of rsd, fibro, rheum. arth., and osteoporosis). I left my cane (and my rsd) up on the altar. Joan Hunter Ministries (out of TX) is a powerful healing ministry (One that I am praying about becoming more involved in as I know she is a great instrument from God). I have had no burning pain or any pain since Friday night. I went back on Sunday night and gave my testimony to the church that there are miracles happening in 2012 and I am proof of it. I have not taken any medication since that night (my body was so full of spirit it was amazing). What an amazing experience for anyone that would like to check her service out. I feel like a baby learning to walk and do so many things WITHOUT PAIN. Just like Paula Abdul said we have to take care of our bodies. I have been getting iv's of natural vitamins and minerals for a year now and it has been over one year since I got off ALL opioids. What miracles have happened in my life. There is also a very spiritual side to healing and it takes alot of soul-searching and prayer but God will heal you as He doesn't want anyone in pain.
Healed in PA,
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Old 05-22-2012, 04:32 PM #4
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Just watched this. It was okay...always good to have some awareness about RSD. Only issue I had was that the best advice Paula could give was to USE ICE...my jaw dropped and I think I just stared at the tv for a minute in shock. If she had not said that it all would have been fine. Obviously her pain affects her in some ways differently from mine since I rarely have the shooting pains like she was talking about (though the burning pain definitely rang a bell). I wish they had taken some time to talk about how this affects everyone differently and what some of the symptoms are besides the pain. Oh well...definitely some good stuff in there too.

I was happy to hear her suggest reaching out to others online (though I wish the advice she used to demonstrate its helpfulness was something other than "ice is your friend"). Dr. Oz had some great advice about ways to reduce inflammation and to avoid stress. I think that for a show like this it was a pretty good little segment and hopefully it will inspire some people to go online and look it up and to become educated about it.
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Old 05-22-2012, 04:37 PM #5
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BTW...I hope someday I will be able to wear heels again like the ones Paula had on. I miss wearing heels...
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Old 05-22-2012, 05:03 PM #6
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Yes, I was disappointed when Paula made the "ice" reference too!

No ice!!
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Old 05-22-2012, 05:20 PM #7
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I watched it and was very disappointed.* Once again, Paula Abdul made us RSD sufferers look bad.* She described how she got rsd after several accidents.* She was almost afraid to even say rsd, she kept saying nerve pain.* She was pretty avoidant about her past with pain and sleeping meds.* With rsd, she was still flying around the world performing and dancing.* Sounds kind of fishy, or maybe she had an extremely mild case.* Paula described what her pain felt like and honestly it sounded more like regular nerve pain, not rsd....but who knows.* A manor red flag for me was that she said ice is her friend and she used to even sleep with it on!!!!!!* We all know ice causes damage and is also completely intolerable for someone with rsd.....not soothing!!* Dr Oz had a display that lit up showing nerve responses and it was pretty misleading in that pain from your arm from example, would cause pain throughout your entire body.* He way he explained it made it sound like its more like fibromyalgia.* She said food was the key to her remission.* She took omega 3, b12, avoided alcohol and nicotine....and ate plant based foods when her nerve pain was bad.* She mentioned stress from being around Simon Cowell on American Idol and X Factor.* Paula taled about her rsd like it was in her pasf, but never said she was in remission, so i dont know her status.* She said "You can undo damage by really taking care of yourself."....speaking of vitamins and diet.* She mentioned she goes in rsd chat rooms and forums.* Paula never mentioned the struggles of other rsd patients and the horrible treatments that we undergo to tame this beast.* It sounded like its nothing you cant fix with a few vitamins and some lettuce!!!!* It just made rsd look very minor and that its not life changing.* I commend her for speaking out, as she has always been ashamed of having rsd....but i think today she did more harm than good as far as rsd awareness goes.* It portrayed it completely falsely!!! So disappointing!!!
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Old 05-22-2012, 05:36 PM #8
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Nothing surprising here. Dr. Oz's show is often filled with inaccuracies, downright contradictive statements within the same show, and poor planning, and superficial information where the meat of the data is never shared, only teasers on the beginning segments! His show with Dr. Weil and Deepak Chopra was an insult to both of those fine men!

I don't watch him anymore. One recent show he went up to one of his fancy graphics on the screen behind the chairs and literally started to BABBLE and wave his arms. It was embarrassing and revealing of how much he DOESN'T know. Often I wonder at his lack of understanding and superficial treatment of most of the things he presents. So I rarely watch him. I see him only by accident now, if I am channel surfing with in summer is less often.

Here is good example, which really sticks in my mind of how sloppy he is:
He had a big show on Vit D... oh, goody, I thought how great!
Then for the first 20 minutes he told everyone to use D3, still good.
Then one of his audience helpers..after all the hugs and kisses, he told
HER to use mushrooms for her D. Well mushrooms have plant D2 in them. And earlier he told EVERYONE that D3 is not in foods. It is things like this that are crazy making. So I don't watch him much and I didn't see this show on RSD for that reason.

Once he had a show on B6... and the video showed him taking B12, clearly labeled in big letters, next to his bed at bedtime. He is talking over this video about how he takes B6 at bedtime. That is only one example. If one knows what to look for, which I do much of the time, one can find irritating things like this in EVERY show. Hubby gets mad at me for talking back to the TV in fact!

So ICE for RSD? Well, she must have had a neuropathy of sorts, like our PN board. Ice works very well for us, and not for you folks here at RSD. So much for Abdul, her "RSD" and Dr. Oz.
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Old 05-22-2012, 07:24 PM #9
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Quote:
Originally Posted by firegirl View Post
I watched it and was very disappointed.* Once again, Paula Abdul made us RSD sufferers look bad.* She described how she got rsd after several accidents.* She was almost afraid to even say rsd, she kept saying nerve pain.* She was pretty avoidant about her past with pain and sleeping meds.* With rsd, she was still flying around the world performing and dancing.* Sounds kind of fishy, or maybe she had an extremely mild case.* Paula described what her pain felt like and honestly it sounded more like regular nerve pain, not rsd....but who knows.* A manor red flag for me was that she said ice is her friend and she used to even sleep with it on!!!!!!* We all know ice causes damage and is also completely intolerable for someone with rsd.....not soothing!!* Dr Oz had a display that lit up showing nerve responses and it was pretty misleading in that pain from your arm from example, would cause pain throughout your entire body.* He way he explained it made it sound like its more like fibromyalgia.* She said food was the key to her remission.* She took omega 3, b12, avoided alcohol and nicotine....and ate plant based foods when her nerve pain was bad.* She mentioned stress from being around Simon Cowell on American Idol and X Factor.* Paula taled about her rsd like it was in her pasf, but never said she was in remission, so i dont know her status.* She said "You can undo damage by really taking care of yourself."....speaking of vitamins and diet.* She mentioned she goes in rsd chat rooms and forums.* Paula never mentioned the struggles of other rsd patients and the horrible treatments that we undergo to tame this beast.* It sounded like its nothing you cant fix with a few vitamins and some lettuce!!!!* It just made rsd look very minor and that its not life changing.* I commend her for speaking out, as she has always been ashamed of having rsd....but i think today she did more harm than good as far as rsd awareness goes.* It portrayed it completely falsely!!! So disappointing!!!
I think the problem with any of these doctor shows is that unless it is an entire hour long episode dedicated to RSD you really aren't going to get anything beyond the very superficial. It's disappointing to us who have and really understand the condition from our own experience...but in 10 minutes you can barely touch on RSD. It is a bit misleading if someone were to see it and think it's that easy to control RSD but if anyone were to actually read almost ANYTHING about RSD they would get a whole different picture.

My expectations were probably just low to begin with that I thought it was okay aside from the ice reference. More like what you would expect if you were describing RSD to a stranger on the street who asks what is wrong with you. Paula is not the most articulate person and while I don't think she did a great job discussing her RSD experience at least she did create some awareness about it by coming on the show. Many of her fans will look up RSD now and it will be that many more people familiar with the condition.
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Old 05-23-2012, 08:47 PM #10
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Default heels and flip flops

You just can't wear them for long. I finally was able to wear flip flops and was so excited! But after about 1 1/2 years I had to give them up again. But maybe I will be able to again some day.
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BTW...I hope someday I will be able to wear heels again like the ones Paula had on. I miss wearing heels...
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