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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#51 | |||
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I have been suffering with RSD/CRPS for 26 years today, this day *exactly* and I have yet to "understand" what remission means. Is it that you plateau? That the symptoms stop getting worse, but you don't get better either? Is it that?
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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#52 | ||
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New to this group & here to learn right now. ThatÂ’s wonderful the Calmere Therapy worked for your daughterÂ…. such a relief for her & your family, IÂ’m sure. You had mentioned writing several page letter to your insurance company to fight for coverage. Would you be willing to send me a DM & share a copy of that? I have no support to help me do that & just not capable currently for taking that on —having a template to work from would be incredibly helpful!!! Have intractable pain & after years of determination, trying combo of different therapies & lifestyle changes — was able to stabilize my CRPS for many years.. But now for last 8 months in excruciating flare non stop, barely able, eat, sleep, ect. Doing everything I possibly can on my own but nervous system is so dis regulated, those modalities are barely working. If your willing to share & help a warrior get some relief, IÂ’d be so grateful!! All pain specialist want to do is SCS & wise enough to know, thatÂ’s not the right route for me.. Thanks for your time & hope to here from you soon. Would love to hear an update on your daughterÂ’s recovery as well. Take care 🧡 |
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