Well, I'd like to add that we on PN forum here, have often discussed how having a "spokesperson celebrity" might help our cause and get more research done.

PN is very common, and more people have it now than MS and PD combined.

The Neuropathy Association is very weak, and let me give you an example of how disappointing:
The Today show was to have Neuropathy on it one day, and this spread over the web and we all watched. You know what it was?
Standing outside with Al Roker and the holding up of a T shirt to buy! Nothing else! no explanation, no time allotted to educate.

I searched Paula Abdul's charity work, and could not find any contributions listed to RSD or its research. She has over 10 other charities however, she participates in.

Very unlike Montel Williams, Michael J Fox or even Celine Dion, who are very active in speaking for their cause.
Celine is very active in Cystic Fibrosis research.
This is an example of real activism by a celeb:
http://www.celinedionweb.com/celine-...-fibrosis.html