Anyone have any luck with it? Side effects? Dosages? My doc wants me to try it... I'm hesitant....

I have been on it since feb. 2012. It makes me very tired and loopy. I am unable to work or drive while on it. It does control some of the pain and tremors. So I have been off work since feb. Have tried pt but did not help. Got RSD from flu shot in left arm.

I have been on Neurontin for over 2 years. It takes some time to build up in your system. The first few weeks I do not recommend driving until you know the effects and your body gets use to it. Side effects is weight gain, tiredness, stuttering. but for me it helped.

It is my primary drug for CRPS. I take 1800mg daily, 600mg three times; once in the morning, mid-afternoon and before bed. It is very often the first drug prescribed for CRPS.

It has been an absolute godsend for me. To test the effectiveness of it, the doctor tried weaning me off of it and things got rough quickly. So back on it.

Most of the side effects pretty much went away for me after a few months. The remaining side effects are a little bit of grogginess and lack of concentration.

I certainly wouldn't be afraid of it. Whether it will work for you? Only one way to find out. The doctor will titrate your dosage slowly.

Good luck to you and keep us updated!

I have been on neurotic for about a year, 800mg 3 times a day. It works great for me

HI,

My daughter has tried both neurontin and Lyrica which are in the
same class of drugs. They are anti convulants. Both may calm
down the excitablity in your brain. Like in the case of others comments
these meds made by daughter both tired and loopy. A lot depends upon
the dosage. I don't think you need to feel hesitant about taking either
but with all meds used for RSD you either have a good response to them
or you don't and if you do not, don't hesitant to tell your PM doc about
it. You are the expert on your own body and how it does and does not
react to various treatments. Everyone is different meds affect everyone
in a different way. Best of luck

My concern is that I have heard it can increase anxiety... I certainly dont need that!

My dr. put me on it a few weeks ago but recently wined me of our cause we noticed a large increase in swelling in my left foot/ankle which is the area of my rsd. she said it was a rare side effect.go figure I would be one of the few but since then the swelling has decreased so I would say its worth a try. I've tried several things and I'm sure I'll keep trying things til I find something that works. Its th nature of our rsd I guess. No two people are the same. Good luck to you. I hope you find relief.

I was on neurontin for several months a while back. It did not help my pain too much...I had a much better response to the Lyrica. The biggest side effect was that it knocked me out and it would come on very suddenly sometimes...like I would blink and be asleep...even if I was standing up. I tended to zone out very quickly and could not concentrate on anything without taking a nap (not good when you are in a meeting or driving a car). I think because of the strong side effects I experienced I never got up to a proper dose that would have helped with the pain because after a couple of months I went off it and switched back to Lyrica. I did also gain about 20lbs after I went on it (same thing happened with the Lyrica when I first started that).

I never had anxiety issues on neurontin. Like others say you don't have good concentration and until you are use to it you maybe groggy. You may even find that you have less anxiety. I say go for it.