Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-15-2012, 05:50 PM #7
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eva5667faliure eva5667faliure is offline
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Join Date: Aug 2011
Location: new jersey
Posts: 3,523
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Quote:
Originally Posted by Vrae View Post
@ alt1268, thank you so much. I have not really researched the laws in CO for RSD/CRPS, but I will definitely check and see if there are any. Yes, I have seen the info on rsdsa.org thank you for pointing to that as well. It is good info and i haven’t taken that document to them, but i guess i should try. It’s funny how they won’t even look at the documents from the three docs that have identified my condition as CRPS II. It’s ridiculous.

The funny thing is that if anything I am guilty of not taking enough pain meds when I have breakthrough pain, and the pain ends up getting ahead of me. I have a love/HATE relationship with meds. And other times, when I took ALL the meds I have to resolve the pain (and that’s a lot), there was no getting past it without some big gun pain killer.

It is hard enough to deal with the fact that I am losing my ability to walk, and the shear volume of pain, that I am forced to plead my case EVERY SINGLE TIME, to every single medical “professional”, to gain some relief.
educate yourself
make yourself be heard clearly
in a inner polite manner demand
respect and not an *** who treats
people as numbers rather than by your name
stand your ground and please always have a
advocate with you if possible
standing with you

someone who cares
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someone who cares
eva
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"Thanks for this!" says:
Vrae (01-30-2013)
 

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