Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 04-09-2007, 10:42 AM #1
bassman bassman is offline
Member
 
Join Date: Feb 2007
Location: Milwaukee Wis
Posts: 276
15 yr Member
bassman bassman is offline
Member
 
Join Date: Feb 2007
Location: Milwaukee Wis
Posts: 276
15 yr Member
Default

Quote:
Originally Posted by artist View Post
remember that if you remove any part of the body's fundamental neural pathways, you rule out taking advantage of any future advances in treatment that may well need those pathways.

Another thought along the same lines as artist was saying...

I heard this option suggested back in 1988 and mentioned it to another doctor who said: "OH NO! DON'T DO THAT!" His reasoning was that you were cutting off pathways that not only incorrectly send pain messages, but also correctly warn that you have stepped on something extremely hot, abraded yourself, etc. If you have "no" sensation you can't consciously remove yourself from danger, etc. And your body can't correctly act (however little it still does) to heal wounds and so on.

Yes, you ultimately need to make your own choice. Don't let only one or two poeple sway you too much, but get as much information as you can before this permanant procedure.

Gook luck,

Mike
bassman is offline   Reply With QuoteReply With Quote
Old 04-09-2007, 11:04 AM #2
used to be used to be is offline
Junior Member
 
Join Date: Mar 2007
Posts: 88
15 yr Member
used to be used to be is offline
Junior Member
 
Join Date: Mar 2007
Posts: 88
15 yr Member
Default recently made this decision

I recently had to make this same decision. Please read through some of the past posts. I found them very helpful. I spent hour upon hour researching this issue. For myself, I decided against it, mainly because I felt, based on the research that I did, that it could make things worse instead of better. I've already lost the use of a limb from this disorder and do not want to risk making this spread. Please do your homework on this so that you can make the decision that is best for you. Whatever way you go, I hope things go well for you. Hope that this helps.
used to be is offline   Reply With QuoteReply With Quote
Old 04-09-2007, 08:05 PM #3
Bronco4586 Bronco4586 is offline
Junior Member
 
Join Date: Apr 2007
Location: Garland, TX
Posts: 70
15 yr Member
Bronco4586 Bronco4586 is offline
Junior Member
 
Join Date: Apr 2007
Location: Garland, TX
Posts: 70
15 yr Member
Default Nerve blocks

My doctor says that the verve endings will grow back..... For some reason I am not sure about that...
__________________
Dana
Bronco4586 is offline   Reply With QuoteReply With Quote
Old 04-09-2007, 09:31 PM #4
Brokenwings's Avatar
Brokenwings Brokenwings is offline
Member
 
Join Date: Feb 2007
Location: Learning to Spread my Brokenwings
Posts: 169
15 yr Member
Brokenwings Brokenwings is offline
Member
Brokenwings's Avatar
 
Join Date: Feb 2007
Location: Learning to Spread my Brokenwings
Posts: 169
15 yr Member
Default

Hi Bronco, for what it's worth, and based on my limited understanding...
The nerves do not grow back in the exact same pattern...NEW nerves can possibly start to grow, and "bypass" the nerves that have been obliterated.

It is similar to "collaterilazion" of blood supply when someone has had a heart attack. In order for the body to "compensate" for a blood vessel that has been blocked by artheriosclerosis (hardening of the arteries.blackage), the heart muscle, "knowing" that it needs a supply of blood, will start making NEW blood vessels to transport the needed blood supply, and "bypass" NATURALLY the totally clogged artery They are smaller little blood vessels, but they do supply SOME blood to the heart muscle. Sometimes, the "collaterization" of new blood vessels is just enough to keep the heart functioning a little bit better; other times, the new blood vessels aren't enough, so the patient has to go in for "Coronary Artery Bypass Surgery", where the Doctor takes a healthy blood vessel from the leg, and uses it to "bypass" the clogged artery in the heart.

On a more simplistic level, nerves act "similarly" when they try to re-establish pathways..may not be the BEST nerve supply, but it is SOME nerve supply. Or, it might be GREAT nerve supply.

So, what I noticed after I had My RF--there was a definite period of time, while the zapped nerves couldn't transport "pain impulses", that my symptoms were decreased; after a while, the sympptoms started returning. So, somehow, the "nerve-connection" got "re-wired" with new nerves being generated. My symptoms did not "worsen"-they just returned to "status-quo"...like they were before the RF. Although it was not a "permanent solution" for me, at least I had about of year of decreased symptoms, and needed FAR less blocks/meds to control things. Then, it was back to "staus quo"...so would I give up that year, if I knew BEFOREHAND that eventually, my smptoms would return? Heck no! ! BUT--that is just how MY BODY responded....everyone is DIFFERENT.

It is great that your are researching everything out that you can! That way, when you have your next vistit with your Doctor, you can discuss all your concerns, and THEN, make a decision that you feel is best for YOU.

YOU know YOUR body BEST! All we can do, is tell you how OUR bodies "reacted" to certain procedures, "good, bad or so-so"...

No "easy answers", unfortunately....

Best wishes!

Brokenwings
Brokenwings is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
vrtualchik (03-26-2008)
Old 04-09-2007, 11:11 PM #5
artist
Guest
 
Posts: n/a
artist
Guest
 
Posts: n/a
Default

Hi,

Good advice from BW, searching the forum as a whole is a very good idea; to start you off, here's an excellent thread about RFA on the spinal disorders forum:
http://neurotalk.psychcentral.com/sh...p?t=906&page=2

best of luck
  Reply With QuoteReply With Quote
Old 06-26-2007, 07:19 PM #6
Peggyann Peggyann is offline
New Member
 
Join Date: Jun 2007
Location: Maryland
Posts: 5
15 yr Member
Peggyann Peggyann is offline
New Member
 
Join Date: Jun 2007
Location: Maryland
Posts: 5
15 yr Member
Default

Thanks brokenwings, I to think If I get a year or even less that is time with out pain I should be able to use that time to strengthen and do a few things like ride a bike, walk, sit, stand w/ out pain. at this point I will take any time. thanks again for knowing how it is in the pain world
Peggyann is offline   Reply With QuoteReply With Quote
Old 06-26-2007, 07:36 PM #7
artist
Guest
 
Posts: n/a
artist
Guest
 
Posts: n/a
Default

Hi Peggyann,

Just wanted to put in a quick word of welcome..


I sent you a quick note on the "new members" thread too. Do an "advanced" search (link at the top of the page) for radio frequency RF, this thread is a little older, new information may have been discussed in other forums...

So, I really wanted to say hi, hope we can help!

all the best
  Reply With QuoteReply With Quote
Old 11-29-2011, 06:03 PM #8
incongnito incongnito is offline
New Member
 
Join Date: Nov 2011
Posts: 2
10 yr Member
incongnito incongnito is offline
New Member
 
Join Date: Nov 2011
Posts: 2
10 yr Member
Default I am not having any luck with the nerve blocks,

I HAVE HAD LIKE 6 NERVE BLOCKS IN 2011 THUS FAR, THAT WERE DONE BETWEEN THE T8*T9 AND L5*S1 FUSION THAT WAS DONE ON 2007 AND HAD RELIEF IN MY LUMBER UNTIL NOVEMVBER OF 2010. NOW WE DISCOVERED THE SLIPPED DISC IN MY T8*T9 WHICH IN VERY PAINFUL. NOW THEY ARE TALKING ABOUT DOING THE RF PROCEDURE. I NEED MORE INFO. FROM PATIENTS WHO HAVE HAD THIS DONE AND WHAT EXACTLY HAPPENS DURING THE PROCEDURE, LIKE SEDATION ETC. HELP. VERY SCARED AT THIS POINT
incongnito is offline   Reply With QuoteReply With Quote
Old 11-30-2011, 06:40 AM #9
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
15 yr Member
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
15 yr Member
Default

Quote:
Originally Posted by incongnito View Post
I HAVE HAD LIKE 6 NERVE BLOCKS IN 2011 THUS FAR, THAT WERE DONE BETWEEN THE T8*T9 AND L5*S1 FUSION THAT WAS DONE ON 2007 AND HAD RELIEF IN MY LUMBER UNTIL NOVEMVBER OF 2010. NOW WE DISCOVERED THE SLIPPED DISC IN MY T8*T9 WHICH IN VERY PAINFUL. NOW THEY ARE TALKING ABOUT DOING THE RF PROCEDURE. I NEED MORE INFO. FROM PATIENTS WHO HAVE HAD THIS DONE AND WHAT EXACTLY HAPPENS DURING THE PROCEDURE, LIKE SEDATION ETC. HELP. VERY SCARED AT THIS POINT
If you have RSD, it's VERY, VERY RISKY. If you don't, it might not be... I had one performed and it made my RSD permanently more severe. Do a google search on Hooshmand and Radiofrequency--that should be warning enough if you have RSD. This is very outdated treatment for RSD patients, and I'd start researching new docs asap...if you have RSD.
LIT LOVE is offline   Reply With QuoteReply With Quote
Old 11-30-2011, 07:02 AM #10
incongnito incongnito is offline
New Member
 
Join Date: Nov 2011
Posts: 2
10 yr Member
incongnito incongnito is offline
New Member
 
Join Date: Nov 2011
Posts: 2
10 yr Member
Default No luck with nerve blocks

Quote:
Originally Posted by lit love View Post
if you have rsd, it's very, very risky. If you don't, it might not be... I had one performed and it made my rsd permanently more severe. Do a google search on hooshmand and radiofrequency--that should be warning enough if you have rsd. This is very outdated treatment for rsd patients, and i'd start researching new docs asap...if you have rsd.
thank u, i will look into further as suggested.
incongnito is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
I have MP, need advice taramarina Meralgia Paresthetica 5 05-07-2007 11:56 AM
Looking for some advice (yet again....) dabbo Thoracic Outlet Syndrome 11 01-10-2007 12:09 PM
Advice???? sallyb Multiple Sclerosis 3 01-09-2007 12:43 AM
Help! I need some advice Peg24 Thoracic Outlet Syndrome 20 11-29-2006 05:33 PM
Need Some Advice, Help hmmmmmm Spinal Disorders & Back Pain 3 09-20-2006 11:30 PM


All times are GMT -5. The time now is 06:49 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.