Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 06-19-2012, 11:56 AM #1
linfull
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Default Got the diagnosis

Just came home from neuromuscular physician visit and husband has a diagnosis of RSD. Now to begin the learning process and what lies ahead for us....
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Old 06-19-2012, 03:12 PM #2
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Linfull,

Welcome to the forum. this site has been a lifesavor for me and many others. Especially when you get the feeling you are all alone in this and no one understands.
I am sorry to hear of your husbands diagnosis but feel free to ask questions, answer questions, rant, rave, etc. Please encourage your husband to also particpate.



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Originally Posted by linfull View Post
Just came home from neuromuscular physician visit and husband has a diagnosis of RSD. Now to begin the learning process and what lies ahead for us....
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Old 06-19-2012, 04:55 PM #3
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It's been quite a "journey" for most of us, but the beauty of this forum is instead of reading a paper or an article on CRPS, it's "real life" from us CRPSers living in the trenches. For good, bad or ugly.

The information within these threads can be extremely valuable. I can't count the number of times I said to myself after reading a post......that's exactly what happened to me!! Or, that's how I felt. It's just nice to know that although CRPS is rare, we're not alone. Not by a long shot.

Keep in mind that while many of us have similarities with our symptoms, etc., most of us have fairly unique stories to tell. And also know that this condition is widely misunderstood, even among professionals. I completely lost count of how many doctors and therapists I saw until I found the right ones.

CRPS is best treated by a multi-disciplinary approach. A team approach. Meaning oftentimes a primary doctor who coordinates the efforts, then complementary professionals like chiropractors, pain management doctors, neurologists, physical therapists, massage therapists, acupuncturists, mental health professionals.....you get the picture. This isn't like any other condition or problem your husband has ever had. Gets lots of opinions as opinions as to how to treat vary WIDELY.

Good luck, encourage your husband to post here, and keep us updated!
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Old 06-19-2012, 07:14 PM #4
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Default Thanks!

Neuromuscular physical doc said he moved quickly through the stages as this all started March 1 of this year and we are starting treatment early. Hoping that the physical therapy will do some good. He has just filed for short term disability to take 6 weeks off from work to focus on PT. Keeping fingers crossed and hoping for a good outcome.
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Old 06-20-2012, 08:34 AM #5
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Where does he have the rsd. May I also recommend that he have sympathitic blocks or gangilion blocks. These can help in the early stages. He should be hooked up with a pain managment dr. who performs these types of procedures.
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