Has anyone sought out anything on like Stem Cell therapy treatments or anything atypical for CRPS/RSD? I was just wondering. I know most of those types of treatments are not in the US, but if anyone has any experience/thoughts, that would be fantastic. Thanks!

I would say tCDS falls into that category. There's a lengthy thread here about it.

Alright. I'll go looking. Thanks

For children.. Mirror therapy, PT, aqua therapy, . the TCDS is an option..many different treatments with mild results on adults may be more affective on children as their systems are still maturing and growing. this is why I believe treatment for children have had better results.. hopefully this was caught early too . this forum has a lot of info for treatment. also visit google for active groups ..like RSDSA.. the have even more access to research and treatment info. .. good luck

I answered this thread before seeing your other thread. A child not only needs to be seen by an RSD specialist, but RsD Children's specialist. There is no reason to see new types of treatment, when there has been so much success with these month long treatment programs.

There are HBOT centers all over the country. To undergo a series of treatments out of pocket, the cost would run $2500-4000, in my experience. The center I went to offered summer discount packages. Sometimes with creative billing for other symptoms or ailments, it can be covered by insurance. It's a great thing to try intandem with warm water pt, etc. I have only heard remission claims on HBOT sites, though.

The first thing I would try, is how she react to being in a warm pool. If it causes her no pain, or a reduction in pain, then I'd encourage her to play in a pool as many hours per day as possible. When I was little, I was like a fish, and spent all day in our pool or in the ocean. Cold water may cause her pain and should be avoided, like ICE. Warm baths with Epsom Salts should also be tested. Lidoderm patches might help her with flares, and since they are lidocaine based and contain no opiates, they are fairly safe.

I would not try tCDS on a child, but that's my opinion based on a conversation I had with a doc I respect and trust.