Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-23-2012, 04:26 PM #11
birchlake birchlake is offline
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Quite a number of us use Trazodone (Desyrel) for sleep. It works very well for me. And most doctors feel it is a relatively safe drug to prescribe with a low side effects profile. Ask your doctor about it.
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Old 06-23-2012, 08:47 PM #12
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before RSD I never had issues adjusting to the extreme tmps. from summer to winter. but spring was always my favorite .. spring still holds true but the summer and winter suck.. RSD gets worse after being in the sun. it gets worse after a certain temp or humidity level. the cold as well. only in the 65 -70 degree range m i good. lower levels then..
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Old 06-24-2012, 12:31 AM #13
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I am the EXACT same way! its really awful! And this summer hit me hard!


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Originally Posted by painman2009 View Post
before RSD I never had issues adjusting to the extreme tmps. from summer to winter. but spring was always my favorite .. spring still holds true but the summer and winter suck.. RSD gets worse after being in the sun. it gets worse after a certain temp or humidity level. the cold as well. only in the 65 -70 degree range m i good. lower levels then..
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Old 06-24-2012, 03:40 AM #14
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Confused heat quest?

My RSD severe in cold weather and seems to be better now in summer except on cold, rainey days, but noticed several of you talking about sweating. I was just dx with RSD in February and since april or so I have had extreme sweating episodes where I am just dripping everywhere...I just wondering if its another symptom of this miserable disorder? I hadnt changed any of my medications when sweating started. I also have Lupus and turning 40 soon so trying figure out if other things applied...waiting for blood tests to check hormones and other labs. Reading this topic and just wondered....
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Old 06-26-2012, 02:00 PM #15
Breezy55 Breezy55 is offline
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I have had RSD now for a very long time,it has been so long that I can't even remember when I was dx with it? I must be having senior moment's?? I live in Wisconsin and the winter's here are very harsh to say the least! I also have to walk up 20 stair's just to get to my second floor apt. Having RSD and trying to get my grocery's in is unbeleiveable (sp?) I am trying to find a new apartment to move to on the first floor. Boy did I get off the subject!! The summer's do cause pain also. Right now like all over the place we are having unusually high temp's. Tommorow it is predicted to hit the high 90's or even 100's! I wish I had a pool that I could go to outdoor's,swimming is one of the only exercising that does not hurt me! O.K. I am going to off the subject again. All I wish for right now is to find someone to do a Ketamine tx that takes someone who has T19 and Medicare-Ya Right! I also would like to know if any one on this site take's anti-depressant's? If you do I really need to know which one's cause the fewest side effect's? Please get back to me with some info. I am so depressed I need to go on something asap! Love to all,try to have a painfree day. Breezy55
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Old 06-26-2012, 05:08 PM #16
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My RSD started with hot/summer weather . It gets better during winter.
Since I believe RSD is a nerve entrapment syndrome it all makes sense. It's well known that nerve entrapment syndromes get worse with hot weather...

Bye
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Old 06-27-2012, 11:11 AM #17
Annie Poo Annie Poo is offline
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Default warmth better for me

CRPS type II, right half of body, 7 years.

Mine gets worse with cold/wind, so A/C can be a problem if it's blowing on me (in car) or too cold. I've only been symptom-free for about 2-3 days in the last 7 years, and that was during a camping weekend where the temp was around 100 degrees and humid. I didn't used to like the really hot muggy summer days we have in the Midwest, but have learned to appreciate them.
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Old 06-28-2012, 11:46 PM #18
painman2009 painman2009 is offline
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Quote:
Originally Posted by Jenn39 View Post
My RSD severe in cold weather and seems to be better now in summer except on cold, rainey days, but noticed several of you talking about sweating. I was just dx with RSD in February and since april or so I have had extreme sweating episodes where I am just dripping everywhere...I just wondering if its another symptom of this miserable disorder? I hadnt changed any of my medications when sweating started. I also have Lupus and turning 40 soon so trying figure out if other things applied...waiting for blood tests to check hormones and other labs. Reading this topic and just wondered....
sweating is another symptom.. as sympathetic nervous system controls glands... such as sweat.....
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Old 06-30-2012, 12:16 AM #19
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Heat and barometric pressure increases kill me. I actually used to live near Sacramento and moved to the Seattle area in part to escape the heat and pain. I can always tell when the pressure starts to rise, even a small amount, as the crushing pain/pressure increase, but overall I am MUCH better now that I'm out of the heat. Very cold days are uncomfortable as well, but this area rarely sees extreme temperatures in either direction. I think we hit 70º today...ahhhhh....

Here's hoping for cooler weather and some relief for you down there!
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Old 07-02-2012, 12:22 AM #20
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Hello, I have found that heat actually makes my arm feel more like its on fire. i mean it feels like that all the time but the sun makes it twice as painful. i am a bit nervous about going on a trip tomorrow. im going to fresno and its 108 im use to beach weather i live in oxnard ca. and i wear a sweater all the time....i hate the heat



kristina
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