Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 06-22-2012, 10:10 PM #1
Sandy Shores Sandy Shores is offline
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Thank you! This is a great suggestion!
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Old 06-23-2012, 01:08 AM #2
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You need to find a new doc asap. If you take your meds as prescribed, then you've done nothing wrong. Is he concerned that your taking a dangerous level or is he only concerned about being the one prescribing them? If you have a pharmacist you trust, speak to him or her, asap.

I am on opiates. I spent several years refusing them because the idea of them scared me due to a family history of drug abuse. I am dependent, but not addicted, and have been on the same dosages for years. I dislike meds that make me feel intoxicated, and luckily, with the help of my doc, We've figured out a combo that decreases my pain substantially. Pretty much ANY activity causes me to flare, so I do tasks for short bursts of time, and then wait till my pain returns to a baseline level in the 3-5 range, before starting again.

You shouldn't be ashamed that you need strong medications in order to have relief. But, you do need to be careful about finding an experienced RSD doc, and then developing a trusting relationship with him or her. It takes time for that to happen, and there are lots of non-narcotic option that will also, hopefully give you some relief. (You should only introduce one new drug at a time, don't allow them to try more than that.)

I'm personally not a fan of pain clinic docs. As a general rule, ALL of their patients are super needy, so they can become overwhelmed with their needs. Their practices are scrutinized for the meds they prescribe, and so some under prescribe. Find a doc that will spend as much time with you as needed. If you can find someone that performs Ketamine infusions, it's certainly an option to consider.
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Sandy Shores (06-23-2012)
Old 06-23-2012, 08:58 PM #3
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I had a dr tell me that only drug addicts seek out ketamine treatments.. ignorant people with medical degree.. I have noticed that a lot of dr,s feel they can do no wrong after they get their license.. they seem to forget that the are here to service us and with out us they are poor and useless.. thats y I believe we don't have cures for a lot of these diseases. to much attention to the symptoms not the cause because there is more money in treating the symptom... I know there are good docs out there. the ones who said I want to do something good...for others not my pocket.. since when is medicine all about the business.. sorry to hear of your issues. I was put on lyrics and still take it.(it does NOTHING for the pain) the reason they r keeping me on it is because it knocks me out after a cple of hours and keeps me ko,d for 3-5 hrs a day...all the drugs carry serious side affects just learn them and AS LONG AS U KNOW YOUR BODY WELL you can avoid most complications...
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Old 06-24-2012, 02:28 AM #4
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I am so sorry that you had to go through this. Sadly, most of us have been through the same scenario...I am glad that you PM doctor is at least working with you. I cannot take Lyrica, it makes me hallucinate and say really weird things. I would love to try the ketamine lotion, but I haven't found anyone who prescribes it. Lots of prayer and good wishes to you!

Cindi
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Old 06-28-2012, 11:34 PM #5
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Quote:
Originally Posted by cindi1965 View Post
I am so sorry that you had to go through this. Sadly, most of us have been through the same scenario...I am glad that you PM doctor is at least working with you. I cannot take Lyrica, it makes me hallucinate and say really weird things. I would love to try the ketamine lotion, but I haven't found anyone who prescribes it. Lots of prayer and good wishes to you!

Cindi
hmm I didn't see that in the side effects paper work I got. I ve hallucinated for a while now .. b4 lyrics but if I had known lyrics could add to this problem I wouldn't have said yes.... uuuuuhhhhggggg!!!!!!
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Old 06-26-2012, 11:10 PM #6
Sandy Shores Sandy Shores is offline
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So how long have you been taking Lyrica? I did some more research on it last night and found numerous articles and blogs by people who had lost some or ALL of their teeth from taking it..Apparently, it's a side effect! That is quite surprising, but more frightening than anything. I've lost teeth before, had crowns, inlays and fillings. It's no fun and obnoxiously expensive! Have you hears about this? Have you had any side effects othr than the sleepiness?
Thank you for your response...best of luck to you!
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