Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-06-2012, 11:23 PM #1
momofrsd momofrsd is offline
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Join Date: May 2012
Location: El Dorado HIlls, CA
Posts: 24
10 yr Member
momofrsd momofrsd is offline
Junior Member
 
Join Date: May 2012
Location: El Dorado HIlls, CA
Posts: 24
10 yr Member
Default Mom of a RSD sufferer

Hello, My 14 yo daughter has had RSD in both her legs hips to toes since Feb 2011. She has been hospitalized 11 times, been on the vent with IV ketamine 6 times, been in extensive outpatient therapy 3 times, had epidurals 2 times, and finally found the thing that has worked!! A SCIATIC NERVE BLOCK. It has been a blessing. Although her symptoms returned after 6 weeks of painfree time, the area of her pain is less and so is the extent! I think with this terrible debilitating disease the things that work depend on the person. The MD's are still not sure where the disconnect is with regards to the "nerve" misreading in RSD patients. Each person is different and each treatment is different, so I say find a MD that will be willing to try it all until something works. DO NOT settle for RSD taking over your life. IF meds don't work, don't take them, move on!! I know it has worked for us.........
KAS
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AintSoBad (07-07-2012), alt1268 (07-07-2012)

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Old 07-07-2012, 12:54 AM #2
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
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AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
Default

Kas, I've had this bastard for going on 30 years. And, it just keeps getting worse.

I don't know how to say this, (I've lost my sense o;f typing) but, You can certainly PM me, anytime.....

ANy how, OMG, how can I feel for you daughter?
I'm 56 yo. And had thise along with TOS, and TBI< ( to name just w g\ few), So there is ALWAYS some sort of help!
I always say, some sort of a gentle chiropractor.
I hope that may Help?
PM me, Ok?

I'm Very ill, and, do nog get here daily, but, I hope, I can help@!
Lord, I've us each day, to earn out bread
And, to keep our options options O;pen to those Younger than Us, o that we can take good care of them!
Our Only Wish!



Pete

ASB.




Gentle!
So I pray for you, that you have some sort of kind,of kind, Insanv\ce\\\\\f\\f\





f
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