Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 07-12-2012, 03:53 PM #1
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Re: question about RSD

I have a question. I think I have RSD, rather than PN. What is guarding? Is it where you want to protect the area feeling pain? I have this in my left foot and ankle. don't want to wear shoes or socks, shave my leg or touch it. I have not had diagnosis. doc said I can't have surgery to correct my ankle because I have something going on in this area. surgery was discouraged. am I suppose to keep moving this foot, using it, shaving and all the rest even when it hurts? Sometimes I just want to sit still. Walking hurts. What will doc want to do for diagnosis? Also have ganglion cyst on ankle, Had two others removed that triggered all this. Structure of ankle is bad, torn tendons, achilles, colapsed ankle basically I cannot get repaired. I am miserable with this. ginnie
ginnie is offline   Reply With QuoteReply With Quote
Old 07-12-2012, 04:48 PM #2
BraveGirl BraveGirl is offline
Junior Member
 
Join Date: Jul 2012
Posts: 54
10 yr Member
BraveGirl BraveGirl is offline
Junior Member
 
Join Date: Jul 2012
Posts: 54
10 yr Member
Default

Wow, Ginnie - it seems like you have a complicated situation. I know nothing about your other issues and what I know about RSD/CRPS is limited to what I have learned in the past 8 months dealing with my daughter, so please just take this as one perspective.

The most common recommendation we have received for treating RSD/CRPS for my 13 y/o is to move her leg as much as possible and to work on desensitizing it. This has been done by both PT exercises and by maintaining as many activities of daily living as possible.

Since you are not sure what your diagnosis is and have other issues going on, I would certainly get clarification on the dx and also whether or not you need to take any of the other issues into account when deciding what activities you should do. Best wishes to you!

Quote:
Originally Posted by ginnie View Post
I have a question. I think I have RSD, rather than PN. What is guarding? Is it where you want to protect the area feeling pain? I have this in my left foot and ankle. don't want to wear shoes or socks, shave my leg or touch it. I have not had diagnosis. doc said I can't have surgery to correct my ankle because I have something going on in this area. surgery was discouraged. am I suppose to keep moving this foot, using it, shaving and all the rest even when it hurts? Sometimes I just want to sit still. Walking hurts. What will doc want to do for diagnosis? Also have ganglion cyst on ankle, Had two others removed that triggered all this. Structure of ankle is bad, torn tendons, achilles, colapsed ankle basically I cannot get repaired. I am miserable with this. ginnie
BraveGirl is offline   Reply With QuoteReply With Quote
Old 07-14-2012, 03:22 PM #3
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Re: thank you Lori and Catra

Thank you both for the information. I really appreciate at least knowing that others do this guarding. I did start the RSD in the left ankle. The condition of the ankle itself is not favorable to good mobility to start with. I go in on the 17th to try and get DX and more information from my doc. Thank you again. ginnie
ginnie is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
ladies with rsd anywhere, but especially hands and arms: do you still do your makeup? anonymous41913 Reflex Sympathetic Dystrophy (RSD and CRPS) 3 07-11-2012 06:52 PM
RSD in hands/arms question? RSDcandice Reflex Sympathetic Dystrophy (RSD and CRPS) 5 07-10-2012 02:07 PM


All times are GMT -5. The time now is 04:54 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.