Originally Posted by Jimking (Post 898217)

You've had RSD since 98 and never seen a pain specialist? If that is the case keep in mind not all pain specialist are equal, so don't get discouraged if you run into one who knows absolutely nothing about RSD. Educate them if at all possible and bring your wife with you if possible too. Very important to have someone bat for you, very important.

Originally Posted by alt1268 (Post 898198)

Keep in mine what happened to JOB. He also suffered, but through it all he never faulted against GOD and in the end he prevailed.

Look on my albums there is a picture of my rollabout. You put your knee on it and push with the other foot.

Originally Posted by betsykk (Post 898205)

I too would most definitely recommend ketamine. It as helped my daughter so much with her pain.

Originally Posted by mbrgold339 (Post 898314)

Paul, Sadly this disease robs us of a full life. As another said, Life is about the small things. I was diagnosed in 2000. In 2004 I carefully planned and tried to execute (excuse the pun):winky: my plan for suicide. Much to my dismay I awoke intubated in an ICU two weeks later. The recovery from my botched attempt left me worse off than before. Now, I just have that as another RSD related diagnosis on my health record. I understand getting to the point of no return. I understand the struggles. The effect we have on our family and what friends we have left. BUT. had I been successful, I would have missed my daughters wedding, the birth of my darling :D(now 4 yr old) grandaughter, and now sharing my daughters second pregnancy. I pray you can find focus away death. Today is a really bad day for me. I'm diverting my attention to avoid further frustration. I now understand the adage "one day at a time" Sometimes "One minute at a time" Look for the small things an avoid the elephant in the room. There's no doubt, this disease sucks but until God calls you home, there is purpose in your being. I will pray for solace.:hug:

Originally Posted by RSD31 (Post 898371)

hi i know where you are coming from if you want to talk please call me i have had RSD since 1980 from a car accident an they did not get it right ontil 1988 and i'm still going today Jerry 807-274-6907

Originally Posted by AintSoBad (Post 898380)

Paul, I'm Pete... I've had RSD, tos, several vertabrae, and apnea, then an aquirired head injury since '83 then another traumatic injury in '98. Add them up.
Just had a full body bone scan and results last week It's All bad.
Full Body pain Constantly even with methadone, and other meds, anti depressants, etch.
Still, I've come to realize mostly from the folks here, that I'd only be Increasing the Pain on my family (whom don't even speak to me). They're right!
Why the hell would I want to do that?
No pain that God would allow us to go through, that he didn't let his Son, is worth it!!!!

So, what kind of Puss would that make us?

Get your *** to a doctor who will give you the meds that will help!
This is NO WAY to talk!

Print this entire list out, and take it to the doctor with you!
GET Help, you've got painful depression~

I love you, and so do all of us here!

Please, Paul, I want to hear back from you!!!! OK?


Do this, and do us All a favor!

Stop this crazy thinking, and get the relief you need!
It IS AVAILABLE!
SEEK IT OUT!

I'm Here For You!

I'll be checking back!

(We can't leave phone #'s or email Addy's here, because the search engines will pick them right up, but, you can PM Me, or any of us!) OK??????

Gonna be looking out for you!


Pete

Remember, I've had this bear, and More, since '83! That's taking me on 30 years! Have lost Everything..... Now, I've got to start rebuilding! And, You can too!!


XO

Originally Posted by scottym (Post 898753)

Brother, your life can be joyous again. But the doctors are only going to mask your pain, not tear it out by the roots. I was diagnosed with RSD same year as you, 1998, but I learned how to rid myself of it by 2000. I haven't had any symptoms since then. It would be my honor to share with you what I learned. Shoot me a direct email or respond to this post I'll tell you what you need to know. (btw, it doesn't involve any medical treatment -- it's all stuff you do by yourself in the comfort of your home and -- best part -- doesn't cost anything.) Whatever you decide to do, my heart goes out to you. No one should have to suffer like you are.

Originally Posted by mellowguy (Post 898838)

Pleaase re-think all your options. I have had rsd since 1997 but, was not diagnosed until 1999. I recieved it due to a work related injury and had several surgeries. I tried Trigger point injections, Acupuncture,a tens unit, a hot tub (medical reasons=tax right off), massage therapy,physical therapy for 14 months. I'm on a variety of pain killers but, only takes the edge off. I thought of leaving this world many timed because of pain. But because of my children I find other things thast actually work. I noticed when I hold my pet cockatoo, my pain level goes down. Somethiing about caring for an animal helps. I also listen to music that calms me. But, the one thing I did find that helps, and this is for information only. I was advised by a relative who works in the medical community to try a little marijuana, I found out just by going to Google and type in "Medical Marijuana" and you'll find over 15 states that have it legal for certain diseases including RSD/CRPS. I tried it and found within minutes my pain was diminished enough that I can live a life. I can leave the house, visit friends, do gardening and a lot of thiings around the house I couldn't before for 11 yrs. I'm in contact with my state legislature who is in favor for legalizing marijuana for medical use, We would be the 16 or 17th state to legalize it for medical use. It stopped my ides of going to sleep for good. Just type in "Medical Marijuana" on Google or ASK.com and you'll be surprised. Be sure to consult your Dr. before trying anything not prescribed. Good Luck

Originally Posted by polarisgold (Post 899134)

My state of Idaho is anti pot. There are a few legislators that may introduce a bill to legalize for medical use. At this point I don't care about the stupid law. Wasinton is medical pot legal. I guess I need to find some on my own. All through high school I belonged to a group of kids that delt pot...kind funny now. Thanks for letting me know of your experience.