NeuroTalk Support Groups - RSD?CRPS Is Suicide The Only Cure?

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - RSD?CRPS Is Suicide The Only Cure? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/173329-rsd-crps-suicide-cure.html)

I second the "be careful" post just above mine. I've never been drug tested, but they do generally have you sign a narcotic agreement that allows them to do this whenever they want. They want to see that you're taking your meds and not hoarding nor selling, and also that you arent taking any they didnt prescribe.

Im not one to recommend suicide, but I can absolutely understand where you're coming from. You feel like your world is crumbling and there is nothing to live for. I get that. Completely.

Please see a good pain management doc. Explore all avenues. Maybe you need an antidepressant. Lyrica can actually case depression so that might be adding to the problem. Dont be ashamed to let your PM doc know about your thoughts. Assuming you arent currently suicidal they wont involuntarily commit you to a psych facility. However, if you need that treatment... GO! I know we cant get rid of CRPS, but imagine how much life would be if you could come to a point of acceptance and find a reason to live.

I hope things are better

You mentioned Ketamine in your ideas of treatment... I have done very well, as I understand your pain, I have had RSD since 98 just as they where trying to find out why I was always in pain vs. just in my head...

I normally live with a pain level of 6 and sometimes I can keep it their with both meds as well a spinal cord stimulator..

What I have done to help me through things is to talk with others, you are not alone... I used to think that, my therapist has an open free session with a group of others just to talk and learn. It is a great help, to help keep your head clear.

My wife and I have worked hard to find out what works and what does not work with my meds and times of day pain.

Here is what has helped keep my pain under control..

7am Cymbalta, Caffeine Pill, 1 Hydromorphone 8mg
8am 2 Tizanidine 4mg
10am Ketamine Oral 100 1ml
11:30 am 1 Hydromorophone
1pm Caffeine Pill, 2 Tizanadine
2:30pm Ketamine 1ml
4pm 1 Hydromorophone
6pm Ketamine 1ml
8pm 1 Hydromorophone
9pm Ketamine 1ml 2 Tizanadine

and if I wake up in pain I have a hydromorophone since I have 1 left based on my scripts.

*** YOU CAN TELL IN THIS LIST WHERE MY HIGHEST LEVEL OF PAIN (EVE) ***

This has also helped me to stop falling as much, when my pain level goes past 10 I normally pass out and fall.

Hi my name is Wendy and I have CRPS TYPE II for two years and 6 months. It's the most life altering pain I'm having to go through. My pain originally started in my right side,(my working hand) then spread over to my left side, then before I knew it I had became full body. I use to be independent, happy, go lucky. Now I count on my husband and friends to help me out. Anyway I found this site thought it may help. Well so Long for now, I have been typing with my left pointer finger

I hope you find the support that helps you on here. It is tough making the adjustments. Some of us have it easier than others. I am one of the more fortunate ones because I do not have excrutiating pain all of the time. I am mobile most of the time. It has altered my life, though. It took away my career. I even went back to work three years ago, determined to work again, as an office manager. Then, I slipped, fell and injured my right arm. CRPS set in, as it had in my right foot/leg, and like you I had a hard time typing. In fact, I could no longer do the job. That was another blow. I worked for 6 years after having it in my right leg. So, now I do what I can by helping out my grown kids with their children, when able, support others with CRPS, on Facebook and other outlets. You will find ways to cope as we all do. Please keep coming back!

Have you tried avinza? You take it once a day. It will make you sick the first week. That will go away, but it also causes constipation that you will have to take something for daily. That being said, a month into treatment, your pain will start fading away, and you will become more functional.

Take your power back. Get effexor. It has given me my life back. RSD right hand x 5 years w nerve pain body wide. Calmed my brain and in three days I awoke and for the first time didn't have a searing pain body wide within seconds of waking up. Your wife and child will be as grateful. Ambien cr has also assured I get sleep. You wear out if your body doesn't restore itself. All the best.

Quote:

Originally Posted by polarisgold (Post 897999)

Shocking title but I've already planned a way I just can't bring myself to do it due to my faith. I don't want to meet God in person that way. The Bible says nothing about suicide maybe because some circumstances its the only option. I'd also hate my wife and daughter to deal with my death. Problem is at this point I believe that is my future.

I aquired RSD in '98 after twisting my ankle. The pain slowly progressed to the point, after there years, of being unable to were shoes. Now I walk as little as possible, less than a hundred feet a day, to the car and back. Sleeping is becoming more difficult. I spend about 4 or 5 hours in bed and a few more in my lounge chair. Waking up with pain and dreading the day is getting way too old!

My pain was originally in my left foot and is spreading to my right foot and both arms.

We almost declared bankrupcey due to the doctors milking every drop of money from us. I'm now on Medicaid and finally headed to a pain doctor on 8/27/12. I've been taking 100mg of Tramadol and 600mg of Lyrica three times a day just to ease the pain while sitting down. While walking the pain meds do very little.

I'm running out of options just to stay in the picture. I'm fighting to stay out of a wheelchair and can't stand the thought. I'd rather just rot away in my lounge chair.

I've tried all the AMA approved treatments plus Hbot, Giant 4' electric magnents, the Water Cure, and becoming Vegan. If you know of anything else I'd love to hear it!!!!