Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 07-19-2012, 09:49 AM #1
mellowguy mellowguy is offline
Junior Member
 
Join Date: Oct 2009
Location: New York state
Posts: 57
15 yr Member
mellowguy mellowguy is offline
Junior Member
 
Join Date: Oct 2009
Location: New York state
Posts: 57
15 yr Member
Laugh Help other then suicide

Pleaase re-think all your options. I have had rsd since 1997 but, was not diagnosed until 1999. I recieved it due to a work related injury and had several surgeries. I tried Trigger point injections, Acupuncture,a tens unit, a hot tub (medical reasons=tax right off), massage therapy,physical therapy for 14 months. I'm on a variety of pain killers but, only takes the edge off. I thought of leaving this world many timed because of pain. But because of my children I find other things thast actually work. I noticed when I hold my pet cockatoo, my pain level goes down. Somethiing about caring for an animal helps. I also listen to music that calms me. But, the one thing I did find that helps, and this is for information only. I was advised by a relative who works in the medical community to try a little marijuana, I found out just by going to Google and type in "Medical Marijuana" and you'll find over 15 states that have it legal for certain diseases including RSD/CRPS. I tried it and found within minutes my pain was diminished enough that I can live a life. I can leave the house, visit friends, do gardening and a lot of thiings around the house I couldn't before for 11 yrs. I'm in contact with my state legislature who is in favor for legalizing marijuana for medical use, We would be the 16 or 17th state to legalize it for medical use. It stopped my ides of going to sleep for good. Just type in "Medical Marijuana" on Google or ASK.com and you'll be surprised. Be sure to consult your Dr. before trying anything not prescribed. Good Luck
mellowguy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
MommadukesCRPS (07-19-2012), polarisgold (07-20-2012)
Old 07-20-2012, 10:13 AM #2
polarisgold polarisgold is offline
Junior Member
 
Join Date: Feb 2009
Posts: 21
15 yr Member
polarisgold polarisgold is offline
Junior Member
 
Join Date: Feb 2009
Posts: 21
15 yr Member
Default

Quote:
Originally Posted by mellowguy View Post
Pleaase re-think all your options. I have had rsd since 1997 but, was not diagnosed until 1999. I recieved it due to a work related injury and had several surgeries. I tried Trigger point injections, Acupuncture,a tens unit, a hot tub (medical reasons=tax right off), massage therapy,physical therapy for 14 months. I'm on a variety of pain killers but, only takes the edge off. I thought of leaving this world many timed because of pain. But because of my children I find other things thast actually work. I noticed when I hold my pet cockatoo, my pain level goes down. Somethiing about caring for an animal helps. I also listen to music that calms me. But, the one thing I did find that helps, and this is for information only. I was advised by a relative who works in the medical community to try a little marijuana, I found out just by going to Google and type in "Medical Marijuana" and you'll find over 15 states that have it legal for certain diseases including RSD/CRPS. I tried it and found within minutes my pain was diminished enough that I can live a life. I can leave the house, visit friends, do gardening and a lot of thiings around the house I couldn't before for 11 yrs. I'm in contact with my state legislature who is in favor for legalizing marijuana for medical use, We would be the 16 or 17th state to legalize it for medical use. It stopped my ides of going to sleep for good. Just type in "Medical Marijuana" on Google or ASK.com and you'll be surprised. Be sure to consult your Dr. before trying anything not prescribed. Good Luck
My state of Idaho is anti pot. There are a few legislators that may introduce a bill to legalize for medical use. At this point I don't care about the stupid law. Wasinton is medical pot legal. I guess I need to find some on my own. All through high school I belonged to a group of kids that delt pot...kind funny now. Thanks for letting me know of your experience.
polarisgold is offline   Reply With QuoteReply With Quote
Old 07-20-2012, 12:32 PM #3
Jimking Jimking is offline
Member
 
Join Date: Mar 2009
Posts: 879
15 yr Member
Jimking Jimking is offline
Member
 
Join Date: Mar 2009
Posts: 879
15 yr Member
Default

Quote:
Originally Posted by polarisgold View Post
My state of Idaho is anti pot. There are a few legislators that may introduce a bill to legalize for medical use. At this point I don't care about the stupid law. Wasinton is medical pot legal. I guess I need to find some on my own. All through high school I belonged to a group of kids that delt pot...kind funny now. Thanks for letting me know of your experience.
If you do it on your owe be careful. If you start seeing a pain specialist most likely they may drug test you periodically (seems to be extremely popular these days). If they find a drug in your system not prescribed or even an elevation of those prescribed drugs can put a damper on doctor-patient relationship.
Jimking is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
polarisgold (07-20-2012)
Old 07-20-2012, 02:42 PM #4
pg2005 pg2005 is offline
Junior Member
 
Join Date: Jul 2012
Posts: 54
10 yr Member
pg2005 pg2005 is offline
Junior Member
 
Join Date: Jul 2012
Posts: 54
10 yr Member
Default

I second the "be careful" post just above mine. I've never been drug tested, but they do generally have you sign a narcotic agreement that allows them to do this whenever they want. They want to see that you're taking your meds and not hoarding nor selling, and also that you arent taking any they didnt prescribe.

Im not one to recommend suicide, but I can absolutely understand where you're coming from. You feel like your world is crumbling and there is nothing to live for. I get that. Completely.

Please see a good pain management doc. Explore all avenues. Maybe you need an antidepressant. Lyrica can actually case depression so that might be adding to the problem. Dont be ashamed to let your PM doc know about your thoughts. Assuming you arent currently suicidal they wont involuntarily commit you to a psych facility. However, if you need that treatment... GO! I know we cant get rid of CRPS, but imagine how much life would be if you could come to a point of acceptance and find a reason to live.
pg2005 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Abbie (12-31-2012), polarisgold (07-20-2012)
Old 12-31-2012, 05:18 PM #5
insomniac insomniac is offline
New Member
 
Join Date: Nov 2012
Posts: 1
10 yr Member
insomniac insomniac is offline
New Member
 
Join Date: Nov 2012
Posts: 1
10 yr Member
Default

Have you tried avinza? You take it once a day. It will make you sick the first week. That will go away, but it also causes constipation that you will have to take something for daily. That being said, a month into treatment, your pain will start fading away, and you will become more functional.
insomniac is offline   Reply With QuoteReply With Quote
Old 12-31-2012, 10:23 PM #6
JackieO JackieO is offline
New Member
 
Join Date: Oct 2007
Posts: 3
15 yr Member
JackieO JackieO is offline
New Member
 
Join Date: Oct 2007
Posts: 3
15 yr Member
Default An answer

Take your power back. Get effexor. It has given me my life back. RSD right hand x 5 years w nerve pain body wide. Calmed my brain and in three days I awoke and for the first time didn't have a searing pain body wide within seconds of waking up. Your wife and child will be as grateful. Ambien cr has also assured I get sleep. You wear out if your body doesn't restore itself. All the best.
Quote:
Originally Posted by polarisgold View Post
Shocking title but I've already planned a way I just can't bring myself to do it due to my faith. I don't want to meet God in person that way. The Bible says nothing about suicide maybe because some circumstances its the only option. I'd also hate my wife and daughter to deal with my death. Problem is at this point I believe that is my future.

I aquired RSD in '98 after twisting my ankle. The pain slowly progressed to the point, after there years, of being unable to were shoes. Now I walk as little as possible, less than a hundred feet a day, to the car and back. Sleeping is becoming more difficult. I spend about 4 or 5 hours in bed and a few more in my lounge chair. Waking up with pain and dreading the day is getting way too old!

My pain was originally in my left foot and is spreading to my right foot and both arms.

We almost declared bankrupcey due to the doctors milking every drop of money from us. I'm now on Medicaid and finally headed to a pain doctor on 8/27/12. I've been taking 100mg of Tramadol and 600mg of Lyrica three times a day just to ease the pain while sitting down. While walking the pain meds do very little.

I'm running out of options just to stay in the picture. I'm fighting to stay out of a wheelchair and can't stand the thought. I'd rather just rot away in my lounge chair.

I've tried all the AMA approved treatments plus Hbot, Giant 4' electric magnents, the Water Cure, and becoming Vegan. If you know of anything else I'd love to hear it!!!!
JackieO is offline   Reply With QuoteReply With Quote
Reply

Tags
crps, rsd


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
A Cure???? tamiloo Multiple Sclerosis 6 02-05-2010 11:42 PM


All times are GMT -5. The time now is 01:56 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.