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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Junior Member
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Pleaase re-think all your options. I have had rsd since 1997 but, was not diagnosed until 1999. I recieved it due to a work related injury and had several surgeries. I tried Trigger point injections, Acupuncture,a tens unit, a hot tub (medical reasons=tax right off), massage therapy,physical therapy for 14 months. I'm on a variety of pain killers but, only takes the edge off. I thought of leaving this world many timed because of pain. But because of my children I find other things thast actually work. I noticed when I hold my pet cockatoo, my pain level goes down. Somethiing about caring for an animal helps. I also listen to music that calms me. But, the one thing I did find that helps, and this is for information only. I was advised by a relative who works in the medical community to try a little marijuana, I found out just by going to Google and type in "Medical Marijuana" and you'll find over 15 states that have it legal for certain diseases including RSD/CRPS. I tried it and found within minutes my pain was diminished enough that I can live a life. I can leave the house, visit friends, do gardening and a lot of thiings around the house I couldn't before for 11 yrs. I'm in contact with my state legislature who is in favor for legalizing marijuana for medical use, We would be the 16 or 17th state to legalize it for medical use. It stopped my ides of going to sleep for good. Just type in "Medical Marijuana" on Google or ASK.com and you'll be surprised. Be sure to consult your Dr. before trying anything not prescribed. Good Luck
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"Thanks for this!" says: | MommadukesCRPS (07-19-2012), polarisgold (07-20-2012) |
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Junior Member
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"Thanks for this!" says: | polarisgold (07-20-2012) |
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#4 | ||
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Junior Member
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I second the "be careful" post just above mine. I've never been drug tested, but they do generally have you sign a narcotic agreement that allows them to do this whenever they want. They want to see that you're taking your meds and not hoarding nor selling, and also that you arent taking any they didnt prescribe.
Im not one to recommend suicide, but I can absolutely understand where you're coming from. You feel like your world is crumbling and there is nothing to live for. I get that. Completely. Please see a good pain management doc. Explore all avenues. Maybe you need an antidepressant. Lyrica can actually case depression so that might be adding to the problem. Dont be ashamed to let your PM doc know about your thoughts. Assuming you arent currently suicidal they wont involuntarily commit you to a psych facility. However, if you need that treatment... GO! I know we cant get rid of CRPS, but imagine how much life would be if you could come to a point of acceptance and find a reason to live. |
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"Thanks for this!" says: | Abbie (12-31-2012), polarisgold (07-20-2012) |
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#5 | ||
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New Member
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Have you tried avinza? You take it once a day. It will make you sick the first week. That will go away, but it also causes constipation that you will have to take something for daily. That being said, a month into treatment, your pain will start fading away, and you will become more functional.
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#6 | ||
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New Member
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Take your power back. Get effexor. It has given me my life back. RSD right hand x 5 years w nerve pain body wide. Calmed my brain and in three days I awoke and for the first time didn't have a searing pain body wide within seconds of waking up. Your wife and child will be as grateful. Ambien cr has also assured I get sleep. You wear out if your body doesn't restore itself. All the best.
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