Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-21-2012, 01:38 PM #1
nalakity nalakity is offline
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nalakity nalakity is offline
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Default Nervous...

I'm soooo nervous...
I am going to see a Dr. Joel Konikow at The Swedish Pain And Headache Center in Seattle on Tuesday the 24th! Has anyone here ever been there before? Anyone ever heard of Dr. Joel Konikow? I can't imagine what they might want to try on me...I've already had ganglion blocks, intense PT, all kinds of meds...but I'm sure there are tons more! I've done a number of things, but nothing anymore invasive than the ganglion blocks. I told them I didn't want to have any procedures done that were anymore invasive than that because after my first ganglion block my RSD spread to my right hand, arm, shoulder and neck! My original injury site is my right foot. Does anyone have any insight on this for me? I realize that I don't really have an exact question here...but I guess I'm just looking for a little support Ya know? I think I'm in the right place!
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Old 07-21-2012, 06:41 PM #2
painman2009 painman2009 is offline
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painman2009 painman2009 is offline
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Quote:
Originally Posted by nalakity View Post
I'm soooo nervous...
I am going to see a Dr. Joel Konikow at The Swedish Pain And Headache Center in Seattle on Tuesday the 24th! Has anyone here ever been there before? Anyone ever heard of Dr. Joel Konikow? I can't imagine what they might want to try on me...I've already had ganglion blocks, intense PT, all kinds of meds...but I'm sure there are tons more! I've done a number of things, but nothing anymore invasive than the ganglion blocks. I told them I didn't want to have any procedures done that were anymore invasive than that because after my first ganglion block my RSD spread to my right hand, arm, shoulder and neck! My original injury site is my right foot. Does anyone have any insight on this for me? I realize that I don't really have an exact question here...but I guess I'm just looking for a little support Ya know? I think I'm in the right place!
I am of no help as far a knowledge of dr. and I hope someone does. but emotional support and understand I can give. The stress of the unknown is stressful, and scary. All i can really say is be comfortable with yourself as you go. know the limit you are willing to put yourself through and do not let them decide for you. I hope all works well for you in this venture.
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Old 07-21-2012, 06:49 PM #3
nalakity nalakity is offline
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nalakity nalakity is offline
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Default Thank you

Thank you Painman I am feeling the fear inside surface each day closer to Tuesday I really appreciate the support!
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Originally Posted by painman2009 View Post
I am of no help as far a knowledge of dr. and I hope someone does. but emotional support and understand I can give. The stress of the unknown is stressful, and scary. All i can really say is be comfortable with yourself as you go. know the limit you are willing to put yourself through and do not let them decide for you. I hope all works well for you in this venture.
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Old 07-21-2012, 07:16 PM #4
birchlake birchlake is offline
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birchlake birchlake is offline
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I have no personal knowledge of this doctor. But I will suggest this and I think it is vitally important in choosing the right doctor to treat CRPS.

Ask him how much experience he has with CRPS and how many patients he has treated.

Do not worry about offending him. You NEED to know if he is experienced with this condition as this is one of the most misunderstood conditions, even by professionals.

Good luck to you!
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