Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-22-2012, 01:40 AM #1
bowilson bowilson is offline
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Confused sweating freezing

Hi, I have had this(RSD) since my butt(coccyx) hit the cement. My life changed instantly with sweating cold sweats that would makeme freeze and my body, head and the world spin, till I threw up. Drenching my clothes where I stand or lay, sweat pouring off my hair like it's a faucet, each individual hair has it's own flow. Freezing cold feels like near death experience the more and more it happens to me. My body is freezing and is pouring sweat off of it, day in day out it never stopped until we raised my time relief pain pill to 40 mg, and then that's when I felt relief from the pain in my neck, back and feet. I was on the 40 mg for a few years like 3 or 4 before raising again to get the same relief. I now am on 80 mg and feel relief from the sweating as I sit and type, which I could not do if it was not for the pain pills.
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Old 07-22-2012, 10:57 PM #2
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Originally Posted by bowilson View Post
Hi, I have had this(RSD) since my butt(coccyx) hit the cement. My life changed instantly with sweating cold sweats that would makeme freeze and my body, head and the world spin, till I threw up. Drenching my clothes where I stand or lay, sweat pouring off my hair like it's a faucet, each individual hair has it's own flow. Freezing cold feels like near death experience the more and more it happens to me. My body is freezing and is pouring sweat off of it, day in day out it never stopped until we raised my time relief pain pill to 40 mg, and then that's when I felt relief from the pain in my neck, back and feet. I was on the 40 mg for a few years like 3 or 4 before raising again to get the same relief. I now am on 80 mg and feel relief from the sweating as I sit and type, which I could not do if it was not for the pain pills.
I hate these pills that they give me.. but I know that I would not be able to continue if not for their minor relief. and I mean minor. but its enough for me to be in pain but focus .. and focus helps me deal better with it.. odd that all these pills say causes drowsiness. but when I take them Im at my most alert.. ha odd. as far as the cold sweats.. last summer was freaking horrible
my wife would be amazed that on the hottest days I still had the coldest limbs. but they were dripping with sweat.. this year not as bad as far as freezing, but the burn is worse. trade off I guess.. good luck to you
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Old 07-23-2012, 02:58 AM #3
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There are 2 variations of RSD/CRPS type 1. Warm 95% of suffers and cold 5% the arm/leg feels cold, the skin is blue in colour and circulation is impaired.if you are like me one of the cold ones you need to be treated with calcium channel blockers.
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Old 09-09-2012, 01:16 PM #4
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Quote:
Originally Posted by bowilson View Post
Hi, I have had this(RSD) since my butt(coccyx) hit the cement. My life changed instantly with sweating cold sweats that would makeme freeze and my body, head and the world spin, till I threw up. Drenching my clothes where I stand or lay, sweat pouring off my hair like it's a faucet, each individual hair has it's own flow. Freezing cold feels like near death experience the more and more it happens to me. My body is freezing and is pouring sweat off of it, day in day out it never stopped until we raised my time relief pain pill to 40 mg, and then that's when I felt relief from the pain in my neck, back and feet. I was on the 40 mg for a few years like 3 or 4 before raising again to get the same relief. I now am on 80 mg and feel relief from the sweating as I sit and type, which I could not do if it was not for the pain pills.
may i plese ask what meds your on for your rsd pain? they had me on vicodin 10 mg every 4 hrs, now that i seen a new primary he cut me to 4 a day and its not cutting it. i also take soma for fibromyalgia, so now i suffer about 6hrs a day without good sleep
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Old 09-09-2012, 06:35 PM #5
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may i plese ask what meds your on for your rsd pain? they had me on vicodin 10 mg every 4 hrs, now that i seen a new primary he cut me to 4 a day and its not cutting it. i also take soma for fibromyalgia, so now i suffer about 6hrs a day without good sleep

You need to see a doc with RSD experience.
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Old 09-09-2012, 06:44 PM #6
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Default hello bowilson

Welcome to Neuro Talk. You will find alot of folks here with RSD. I have it also, or some kind of PN. From experience, I also know the pain meds themselves can make a person sweat and have chills. When I have a flair or a worse day, I tend to sweat. I think it is a reaction from the pain too. Check with your doctor about this more. Hope you get alot of response to your post. Glad you found this site. ginnie
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Old 09-10-2012, 02:55 AM #7
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if you are like me one of the cold ones you need to be treated with calcium channel blockers.
thanks for the info, but what is this? an injection? a pill? do you get it from a PM doc or neurodoc? I just don't know anything about it.
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Old 09-10-2012, 03:42 AM #8
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Unfortunately I also have a neuro-receptor disorder which means I get instant immunity after one dose so not on any medications.
Try this link
http://www.patient.co.uk/health/Calc...l-Blockers.htm
Only the Dutch seem to know about it.
http://pdver.atcomputing.nl/pdf/CRPS...nt_version.pdf
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Old 09-10-2012, 07:19 PM #9
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Try taking a bath (might as well add Epsom Salts) to reset your body temp. It seems to work for me.
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Old 09-20-2012, 12:27 PM #10
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I am having the same problem, i eather get REALLY cold or REALLY hot and sweat with both terribly. My nuero saw me the other day (he deals with my epilepsy) and he saw my arms and saw how purple and red they were and felt them and said they were really cold and was very suprised since it was 80 degreese out. I dont ever have an inbetween anymore its eather hot or cold and i cant find anything to help. He doesnt know anything about RSD, but he defently could tell obvisly somthing isnt rite. but he was going to try and find a dr that might know something about it.
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