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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Hello everyone. I am 25 year old male, recently diagnosed with causalgia, also known as complex regional pain syndrome in the second stage. I had a bmx accident december 5th, and due to crummy doctors at the time, was walking around with a shattered hamate hook and an affected ulnar nerve for 4 months. After I found the right ortho, he replaced the hamate and I soon developed the symptoms of crps at a fast pace. I was sent to a pain management doctor who promptly gave me a diagnosis, and we are attacking this aggressively. I hope I can share info on my condition, as i know there is lots to learn. Thank you all and best wishes.
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#2 | ||
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Morgan, welcome to the forum. Sorry it is under these circumstances. So many of us (including me) were not diagnosed quickly. Sure doesn't help, but there is still hope for improvement; I have seen quite a bit since my diagnosis in 2008.
This is a good place for support and to learn. Hope the best for you. |
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"Thanks for this!" says: | Morgan Herritage (07-27-2012) |
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#3 | ||
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well if you can't share here where can you.. welcome my friend. absolutely share what you can and learn what you can from this forum. it is why this place exists , so people like us are not alone. Post your updated progress Questions and info that you have learned. Also a great place to vent and get support from the people who need no explanation as we are in this all together.
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#4 | |||
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Welcome to the forum. Sorry you got this monster. Here you can learn alot about our disease, treatments and just plain talk to others who understand what you are going through.
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__________________
. GOD help me be faithful in the midst of my suffering. Alt1268 |
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#5 | ||
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Junior Member
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Welcome Morgan. This stuff really sucks but it's good to have people to share with who understand.
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#6 | |||
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Hey all. I'm blessed, in the fact I have a whole team of doctors on my side. My ortho ordered x rays last week and it showed minor bone deterioration already. He wants me back in 3 months so take more pictures. My pain doc is ordering all the therapy I can handle. My physical therapist is starting me off on sensory and range of motion excersices. And having a group to consult with online is a huge help. I just don't want to look back and say I didn't at least try to get this under control. No matter how it ends up. Thank you for the kind words and best wishes to all.
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#7 | ||
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Quote:
CRPS is always best handled in a multi-disciplinary manner. Having just one doctor will almost assuredly not give you the results of a "team" of professionals. My podiatrist is my primary for CRPS. I also use a pain management doctor, chiropractor, massage therapist and my General Practitioner. They are all quite educated about CRPS and work with each other (they actually call each other on the phone to discuss me, can you believe that??). But the team has to be assembled and managed by you, the patient! Good luck to you! |
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