Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 07-29-2012, 01:12 PM #11
alt1268's Avatar
alt1268 alt1268 is offline
Member
 
Join Date: Aug 2011
Location: delaware
Posts: 904
10 yr Member
alt1268 alt1268 is offline
Member
alt1268's Avatar
 
Join Date: Aug 2011
Location: delaware
Posts: 904
10 yr Member
Default

If you have private insurance, USE IT! go see the neurologist and make sure he notes that this is crps from an accident and have him send a copy to the WC. I have been fighting mine as well. I now have both feet involved with a running ice water feeling through my abdomen and jaw. (the running water thing is not constant, but that is how it started in my feet.

What ever you do I do not recommend you ever settle medical. Like you said it could cost millions in the long run.

Quote:
Originally Posted by free2frog View Post
Thank you Alt I do have an attorney I finally got one last month as WC keeps denying the Neuro Appt. And since My doctors had stated the appearance of CRPS I found an Attorney that handles WC cases and CRPS, I took about a week reviewing Attorneys before my decision. The Attorney I choose picked up on my symptoms without me ever mentioning CRSP they asked if any of my Dr. had said anything about it because that's a game changer now I'm looking at a lifetime of medical care, but based on other clients pray that it not CRPS because even if they get the maximum Indiana allows it wont be enough in the long run if I progress through the stages quickly.
__________________

.


GOD help me be faithful in the midst of my suffering. Alt1268
alt1268 is offline   Reply With QuoteReply With Quote
Old 07-29-2012, 01:21 PM #12
free2frog free2frog is offline
Junior Member
 
Join Date: Jul 2012
Location: Indiana
Posts: 30
10 yr Member
free2frog free2frog is offline
Junior Member
 
Join Date: Jul 2012
Location: Indiana
Posts: 30
10 yr Member
Default

Quote:
Originally Posted by alt1268 View Post
If you have private insurance, USE IT! go see the neurologist and make sure he notes that this is crps from an accident and have him send a copy to the WC. I have been fighting mine as well. I now have both feet involved with a running ice water feeling through my abdomen and jaw. (the running water thing is not constant, but that is how it started in my feet.

What ever you do I do not recommend you ever settle medical. Like you said it could cost millions in the long run.
I do have private Insurance but they denied coverage for neurologist as Original Injury occurred before Insurance was in effect.
325,000 is the max allowed under Indiana work comp there is a second fund that may help but either way it wont be enough from what i have been reading.
free2frog is offline   Reply With QuoteReply With Quote
Old 07-29-2012, 04:18 PM #13
alt1268's Avatar
alt1268 alt1268 is offline
Member
 
Join Date: Aug 2011
Location: delaware
Posts: 904
10 yr Member
alt1268 alt1268 is offline
Member
alt1268's Avatar
 
Join Date: Aug 2011
Location: delaware
Posts: 904
10 yr Member
Default

have they started any injections yet? I would definitely consider TDSC or ketamine and not fool around with the rest.

I am sorry to hear that there is a max in your state. I have life time medical as long as I go to the dr. within 1 year.
__________________

.


GOD help me be faithful in the midst of my suffering. Alt1268
alt1268 is offline   Reply With QuoteReply With Quote
Old 07-29-2012, 06:47 PM #14
free2frog free2frog is offline
Junior Member
 
Join Date: Jul 2012
Location: Indiana
Posts: 30
10 yr Member
free2frog free2frog is offline
Junior Member
 
Join Date: Jul 2012
Location: Indiana
Posts: 30
10 yr Member
Default

Quote:
Originally Posted by alt1268 View Post
have they started any injections yet? I would definitely consider TDSC or ketamine and not fool around with the rest.

I am sorry to hear that there is a max in your state. I have life time medical as long as I go to the dr. within 1 year.
No injections yet I go to see Pain Management Dr. this Wednesday a couple hours after Physical therapy so I should be flared up pretty good, Intend to talk about pain control short term and long term, work comp here is really bad the odds of getting TDSC or Ketamine approved is slim to none.
free2frog is offline   Reply With QuoteReply With Quote
Old 08-02-2012, 12:08 AM #15
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
Default

Hi free2frog,

A few questions/concerns you might want to look into.....

Did you by any chance have a lidocaine PainBuster pump after the surgery ? It was commonly used for a awhile, until they noted that a lot of people ended up with chronic severe burning pain.

Also, those shoulder surgeries frequently require the use of ice machines to control inflammation and pain after surgery. They can cause/trigger RSD.

Either of those issues could open up other legal issues that you may want to pursue.

Going back to your original comments/title of the thread......YES ! You belong here. Even 'without an official dx' or researching this dx yourself to question docs (who often aren't knowledgable about RSD).....if you think you can learn something, share something, or get needed support.....you BELONG !
__________________

.


Gee, this looks like a great place to sit and have a picnic with my yummy bone !
finz is offline   Reply With QuoteReply With Quote
Old 08-02-2012, 09:23 AM #16
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
15 yr Member
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
15 yr Member
Default

Discuss the idea of leaving your employer with your attorney before you do... You may lose quite a bit of protection if you do. (WC laws vary from state to state.) If you are forced into a lower paid position, that might be made up by WC. And what if your symptoms increase to the point you can't work? (Sorry, an unfortunate reality.)

Staging isn't really done anymore. It just wasn't accurate for most patients.

Consider Stellate ganglion blocks, warm water PT, tens unit, HBOT, Ketamine, etc.
LIT LOVE is offline   Reply With QuoteReply With Quote
Old 08-04-2012, 09:16 AM #17
free2frog free2frog is offline
Junior Member
 
Join Date: Jul 2012
Location: Indiana
Posts: 30
10 yr Member
free2frog free2frog is offline
Junior Member
 
Join Date: Jul 2012
Location: Indiana
Posts: 30
10 yr Member
Default

Quote:
Originally Posted by finz View Post
Hi free2frog,

A few questions/concerns you might want to look into.....

Did you by any chance have a lidocaine PainBuster pump after the surgery ? It was commonly used for a awhile, until they noted that a lot of people ended up with chronic severe burning pain.

Also, those shoulder surgeries frequently require the use of ice machines to control inflammation and pain after surgery. They can cause/trigger RSD.

Either of those issues could open up other legal issues that you may want to pursue.

Going back to your original comments/title of the thread......YES ! You belong here. Even 'without an official dx' or researching this dx yourself to question docs (who often aren't knowledgable about RSD).....if you think you can learn something, share something, or get needed support.....you BELONG !
Finz, no lido ball had a nerve block,( EMG came back normal) but did have a cryo cuff Ice machine for 2 weeks after surgery so I will have to do some researching on that, and Thank you I guess I do belong here.
free2frog is offline   Reply With QuoteReply With Quote
Old 08-04-2012, 09:32 AM #18
free2frog free2frog is offline
Junior Member
 
Join Date: Jul 2012
Location: Indiana
Posts: 30
10 yr Member
free2frog free2frog is offline
Junior Member
 
Join Date: Jul 2012
Location: Indiana
Posts: 30
10 yr Member
Default

Quote:
Originally Posted by LIT LOVE View Post
Discuss the idea of leaving your employer with your attorney before you do... You may lose quite a bit of protection if you do. (WC laws vary from state to state.) If you are forced into a lower paid position, that might be made up by WC. And what if your symptoms increase to the point you can't work? (Sorry, an unfortunate reality.)

Staging isn't really done anymore. It just wasn't accurate for most patients.

Consider Stellate ganglion blocks, warm water PT, tens unit, HBOT, Ketamine, etc.
LIT LOVE I have talked to my attorney and he has stated that it may help my case but will not hurt it. I am actively looking for something new, closer to home. I am open to any treatment options but first I have to find someone who believes me and not trying to cover there butts.
free2frog is offline   Reply With QuoteReply With Quote
Old 08-04-2012, 10:06 AM #19
free2frog free2frog is offline
Junior Member
 
Join Date: Jul 2012
Location: Indiana
Posts: 30
10 yr Member
free2frog free2frog is offline
Junior Member
 
Join Date: Jul 2012
Location: Indiana
Posts: 30
10 yr Member
Default

Quote:
Originally Posted by free2frog View Post
No injections yet I go to see Pain Management Dr. this Wednesday a couple hours after Physical therapy so I should be flared up pretty good, Intend to talk about pain control short term and long term, work comp here is really bad the odds of getting TDSC or Ketamine approved is slim to none.
So I went to see pain Management Dc. last Wednesday after working 3/4 of the day PT was canceled that day (long story) But as expected my hands were swollen nice bright red splotch on my wrist original burn area my legs from the knees down swollen burning toes looking like cherry tomatoes, my shoulder fine fine a little achy nothing bad. The doc comes in I go over everything with him all the symptoms and issues. He then tells me he has no idea why I am having these other issues and it might be due to the meds Gabapintin that he put me on and that I should start weaning off them and if my "Issues" increase then resume prior dosage and follow up with my GP for further care. So I flat out asked him about CRPS/RSD and was told he treats a number of patients with That but I was referred to only to ensure the nerve block and or surgery did not cause the issue and that with the normal emg they had proved that and he could not comment on the other issues that I Might be having. No further follow-up with his office is needed.
free2frog is offline   Reply With QuoteReply With Quote
Old 08-04-2012, 10:53 AM #20
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
15 yr Member
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
15 yr Member
Default

Do these two docs know each other, perhaps?

I've noticed local docs tend not to talk badly about one another, presumably because they are watching each other's backs. Sometimes it takes going to another, larger, city to get an honest and objective opinion (sadly).
LIT LOVE is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
I don't know where I belong kyangel04 Survivors of Suicide 11 07-25-2012 10:14 AM
I think I belong here abby2 New Member Introductions 5 07-16-2011 05:18 PM
WHERE do i belong ????? Rrae New Member Introductions 6 11-27-2009 04:48 PM
not sure if I belong here? kfarneti New Member Introductions 7 09-24-2009 12:16 PM
Anybody Here Belong To AAA? Kitty The Stumble Inn 32 05-14-2009 03:57 PM


All times are GMT -5. The time now is 08:21 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.