Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-01-2012, 05:13 AM #1
LIT LOVE LIT LOVE is offline
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Regarding SSD, those who don't have enough work credits only receive SSI, not SSDI. And that is only for those with very limited income. It's essentially welfare to keep the disabled from becoming homeless.
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Old 08-04-2012, 01:29 AM #2
painman2009 painman2009 is offline
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HI phyllis. no pain management dr.. huh.. I kinda like that idea. I have my nightly cocktail but it doesn't do much for the pain until or hold i say unless i take three or more over lapping consecutively. and sleep evades me often. I think I read earlier in this thread that you should do what you are comfortable with. and as far as dr,s saying its all in your head.. have fun with them. they hate being educated those types of Dr,s. bring material on RSD to him/ her and make the Dr read it then see what is said. do not be afraid . stand tall be confident in the knowledge you have . and remember that it is the dr,s "job" to find out why u are in pain, and if they are unequal to the task you can either walk out and find a different Dr or challenge them to do their job. I would do both and never return to that dr . I think best bet is to find an RSD dr near ou if you can. or a dr that isn't afraid to continue to learn and be open minded. Remember their is no cure for the common cold either but dr,s see patients and treat them any way. good luck.
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Old 08-04-2012, 11:26 AM #3
Breezy55 Breezy55 is offline
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I went for over 3 year's before any Dr/Dr's. could dx me with what I had! However during that time without any dx. I could not stand the pain. I was on all kind's of pain med's and had multiple stay's at the hospital with a morphine pump. I then decided to go to a inpatient clinic to get off all of the drug's I was on,still not knowing that I had RSD. I was there for about 14 day's. During that time I cannot even tell anyone how much pain and syptom's I was having going thru withdrawl. I fiannly left and stayed for a few day's at my parent's house because I was still on 1 med which I had been on for over 12 year's (clonazepam) which I had started because of severe panic attack's. The 2 day's after I went off of that I could not stand the pain,also was vomiting and sweating all day and night. My weight went from about 115 pds to 96pds. I finally went to see a Nuerologist who did an Emg and that is when I found out that I had severe RSD. To make a long story short,I am back on some pain med's. However I did find out that I have a low tolerance. I do not care if I am addicted at least I can try to make the rest of my life the BEST it can possible be!! Breezy55
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