no sleep is definetly one of the worst things...it spirals out of control...

I had it explained that there is a spectrum of certain pain disorders..........

RSD ------------------> Fibro----------------> CFS

RSD - severe pain, mild fatigue

CFS - severe fatigue, pain

Fibro - mix of both.

(this is according to one of my consultants). He also believed that full body RSD = Fibro. (I strongly disagree with this as with fibro doesn't lead to the same symptoms as in osteoporosis, swelling, colour changes etc). He has changed his tune and decided that full body RSD does exist now (unfortunatly).

Also, as someone said, if you have on pain disorder you are more likely to develop another and you are more likely to end up injuring another part of you....... (even as simply as using crutches LONG term leads to nerve damage in thumbs and palms) etc etc......

take care

love

Froggsy xxxxxxxxxxxxx

Hi Froggsy,
I definitely agree with you that your consultant thinking that full body CRPS = Fibromyalgia is WRONG!
I'd love to know his physiological explanation of that. My symptoms are extreme in their differences with both, my CRPS has all the hallmark signs of a neurological disorder whereas my Fibro is definitely muscular in origin.
How will we ever move forward if we have consultants with this midset?
Tayla

tell me about it!

UK consultants are FAR worse.... REAL idiots... but he explained it to me as "Chronic pain which causes memory problems, low mood and is full body is fibro, chronic pain which affects one bit is RSD."

Yep.. Fine.

No offense to fibro sufferers... but from what I read the pain from fibro is not as severe as RSD pain, it does not cause (many of) the physical problems the RSD does - such as swelling, colour change, joint deformity, neurological problems etc etc etc....

but.... if it's pain it's either depression, fibro, TMJ, chronic pain syndrome or if you have an EXCEPTIONAL dr that's heard of it. RSD.

Can't stay at comp more - but I made sure I left that dr!!!

Love ya

Froggsy xxxxxxxxxxxxx