Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-07-2012, 07:28 PM #1
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Yes, in my RSD effected arm, and mirroring in my good one... So, no pain in the "good" one, but nerve issues including twitching and shaking, temp regulation issues, hair growth oddness, and redness.

And none of my meds are likely to be the cause. I'm mostly just on opiates at this point.
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Old 08-07-2012, 10:31 PM #2
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Quote:
Originally Posted by LIT LOVE View Post
Yes, in my RSD effected arm, and mirroring in my good one... So, no pain in the "good" one, but nerve issues including twitching and shaking, temp regulation issues, hair growth oddness, and redness.

And none of my meds are likely to be the cause. I'm mostly just on opiates at this point.
Thanks Lit Love

Have you or anyone notice the twitches increasing in strength? Mine are increasing in strength and I am worried that it will affect my walking ability.
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Old 08-08-2012, 08:50 PM #3
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I similarly was diagnosed with CPRS after surgery earlier this year. One of the first odd symptoms I noticed, and tried to ignore by blaming my medications, was twitching. I can't say they have increased in strength or pain but are annoying. But I also started on Gabapentin and now Lyrica within a short time after they started. My doctor indicated these meds help to calm the nerves that fire off these twitches. I'm not saying the doc has the answer, but it might be worth asking your doctor about. Good luck.
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Old 08-09-2012, 01:02 AM #4
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yep, i twitch in my digits, and my eyebrow, my eyes. Always random, and annoying.
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Old 08-09-2012, 10:44 AM #5
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Thank you for everyones replies.

I have twitching going on in my legs, arms and mid body. They are very constant. I have about 20 per minute. I feel like I look like a crack head.... Is there medication to control this behavior? I left a message for my doctor this morning becase it seems like my twitching is getting stronger and more often.
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Old 08-09-2012, 04:30 PM #6
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Quote:
Originally Posted by Orrwhat View Post
Thank you for everyones replies.

I have twitching going on in my legs, arms and mid body. They are very constant. I have about 20 per minute. I feel like I look like a crack head.... Is there medication to control this behavior? I left a message for my doctor this morning becase it seems like my twitching is getting stronger and more often.
I get really strong ones in my back, and my arms, my legs have them but they are not as strong. I dont have the strong ones very often maybe 4-5 over and hour. But my fingers have tremors all the time, as well as my toes. My eye lids/brows twitches a lot too.

hopefully you will get a callback from doctor soon,and find some relief.
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Old 08-09-2012, 05:03 PM #7
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Quote:
Originally Posted by RSDcandice View Post
I get really strong ones in my back, and my arms, my legs have them but they are not as strong. I dont have the strong ones very often maybe 4-5 over and hour. But my fingers have tremors all the time, as well as my toes. My eye lids/brows twitches a lot too.

hopefully you will get a callback from doctor soon,and find some relief.
Thanks Candice! The doctors office called and he is out until tomorrow. So I should be hearing back soon. It is nice to have a support system in place that understands what I am going through.
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Old 08-09-2012, 10:07 PM #8
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Quote:
Originally Posted by Orrwhat View Post
Thank you for everyones replies.

I have twitching going on in my legs, arms and mid body. They are very constant. I have about 20 per minute. I feel like I look like a crack head.... Is there medication to control this behavior? I left a message for my doctor this morning becase it seems like my twitching is getting stronger and more often.

Hello Orrwhat,

Do the twitches look like the tremors associated with Parkinson's ?

Do you twitch more, say....in your hand, when you are trying to use that hand to do a task, like writing or picking up an object ?

Or do the twitches stop when you are engaged in a task ?

Or are they constant no matter what ?

Info on the above might be able to help your doctor zero in on the problem.
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Old 08-11-2012, 11:48 PM #9
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Originally Posted by finz View Post
Hello Orrwhat,

Do the twitches look like the tremors associated with Parkinson's ?

Do you twitch more, say....in your hand, when you are trying to use that hand to do a task, like writing or picking up an object ?

Or do the twitches stop when you are engaged in a task ?

Or are they constant no matter what ?

Info on the above might be able to help your doctor zero in on the problem.
I don't believe mine are like the tremors associated with Parkinson's but that is something I will keep an eye out for in the future. I am still waiting for a call back from my doctors office. Hopefully tomorrow
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