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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Junior Member
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Not sure I belong here as no one will say I have CRSP My Shoulder surgeon and Pain management Doctor both say I appear to be developing CRSP.
I will try to keep this short I got hurt at work Thanks to work comp and there treatment protocols it took 3 months (February 2012)before I had Surgery on my Right shoulder for a torn laberum and had to have the rotater cuff cleaned up. Within a month of surgery I developed an intense burning in my Right wrist my Surgeon and I wrote it off to the sling rubbing, but even after coming out of the sling the burning has never stopped, the intensity changes from time to time. within 3 months of surgery the burning had spread and I developed numbness and tingling in my hand with what I call lighting bolts shooting up my arm. this has since spread to both arms from the elbow down and both legs from the knee/ mid calf down. I have in the last few months developed the burning sensation in my chin ( which comes and goes depending on severity of other areas) and around the left eye that is consistent and burns like there is sweat dripping in my eye. also have cluster headaches and migraines since surgery. None of this makes any since to me the burning swelling the sweating cant stand Hot water on my hands or wrists clothing even bed sheets touching my feet or hands/wrist. I'm 44 years old and raised old school no blood no foul rub some dirt on it walk it off. I hate taking pills but currently take 600mg of Gabapentin 3x daily and Soma only at bed time as it make me to tired to take it 3x daily Tylenol as needed which helps for the shoulder aches but nothing else also take B complex vitamin. I stopped all narcotic pain meds some days are tolerable but mostly I am miserable and walking is getting more painful with the feet being involved. I guess I should add My Surgeon has for 4 months tried to get me into see a Neurologist But work comp continues to denies it says that symptoms are un related to Injury I did retain a work comp Lawyer about a month a go to try to help but no luck as of yet. My regular health INs denies any coverage as original injury occurred 2 weeks prior to insurance being in effect. Any Ideas here The more I read on this CRPS the scarier it gets, With my Regular Dr. and testing we have ruled out PVD, Diabetes, EMG last month showed some mild carpel tunnel in wrist but no other nerve damage in the arm or shoulder. |
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#2 | ||
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Junior Member
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I am so sorry to hear about this. Work comp can...WILL make life as difficult as possible. I am going through a similar situation and I feel your pain. It is a good thing you got a lawyer though...I had to as well. I would argue that if it were not for your work injury you would not have had a surgery that gave you CRPS, which I definitely believe you have...but I am no doctor! M lawyer and doctor recently had to make this very same argument to work comp...and it worked! Please give it a try...and think about getting back on your pain meds...I understand how you feel about that. A lot of people feel the same way, but as long as you take it in moderation you'll be fine. I mean your pain level will lower, at least a bit. Anything is better than nothing, right?
Gentle Hugs |
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"Thanks for this!" says: | AintSoBad (07-28-2012) |
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#3 | ||
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"Thanks for this!" says: | AintSoBad (07-28-2012) |
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#4 | ||
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Thanks painman2009 and NALAKITY it really been frustrating with work as I returned 3 weeks post op to light duty It's a pay check at least only allowed 40 hours a week at 8 hours a day I am physical spent. Before the Injury I was a truck driver delivering products to stores 6-8 stops a day hand unloading almost 30,000 lbs over a 10-14 hour day 4 days a weeks. Now I peel stickers off plastic totes 8 hours a day and I'm completely wiped, by the time I drive an hour home I can barley walk to get in the house and cant wait to get boots and socks off as my feet and legs are on fire. Some days direct sun light hurts I feel like a vampire as the sun light increases the burning sensation. I go back to pain management doctor this week I guess I'll talk to him about trying another pain Med since I cant get cleared to drive without seeing a neurologist. I cant take NSAIDs even Aspirin as they cause antiphalactic shock. I still have Physical therapy 2x a week but just recently learned not to apply ice I always iced my shoulder after therapy per the therapist ( I have no burning in my shoulder) but have found my symptoms are not as bad afterward.
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"Thanks for this!" says: | AintSoBad (07-28-2012) |
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#5 | ||
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In Remembrance
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Freeto,
Please, be sure that you don't have TOS as well, they're common together! (Thoracic Outlet Syndrome). There's a spot on this website for that as well. I have them both, going into my 30th year. It can wear on you. And, there's no cure sadly, just pain relievers, which knock the edges off. I wish you all the best! Pete Asb |
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"Thanks for this!" says: | free2frog (07-29-2012) |
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#8 | |||
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Welcome to the forum. You are definetley in the right place. Unfortunately, you can not walk this out. RSD is truly a monster. Fast intervention is important. You definetley should be getting blocks from a pain management dr.
I would also recommend you get an attorney fast. WC is out for them and your employer. They are known to deny treatment and cause more pain then what we need. Also this will help a little bit with the stress that causes flares. Feel free to ask questions, rant, rave, etc. ![]() ![]()
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. GOD help me be faithful in the midst of my suffering. Alt1268 |
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"Thanks for this!" says: | free2frog (07-29-2012) |
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#10 | ||
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It's the result of failing that causing me Stress as a driver on light duty I still get Driver's Pay 16.95/hr but when I fail the physical my work will drop me to warehouse pay 9.50/hr So I will have to find a new job( more stress) |
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