Ketamine infusions have been more effective for me than any other treatment.

I started with the 10 day low dose outpatient protocol in April 2010. I currently receive 225 mg, 2 days in a row, every 4-5 weeks.

My RSD is not completely cured. But I am so much better than I was. I still take Topamax, Clonodine, Cymbalta, and Fiorcet PRN.

Good luck to you. Sandy

Thanks, all, for the suggestions. So now I'm on lyrica 450 mg, cymbalta 90mg, Percocet 10/325, trazadone 150mg, amitriptyline 100mg, and ambien cr 12.5mg. I've had problems with insomnia for 20 years and have been taking ambien on and off since 1992. I have the tolerance of an elephant when it comes to sleep meds, so even with all these meds I still have trouble with sleeping! The pain just makes the sleeping issue so much worse. It really is a struggle just to make it through the day - but primarily it's a struggle at night, when the pain is so much worse.
I know I need to work on sensitization of my foot, but the idea of something touching it makes me literally nauseous. But I know I've got to bite the bullet.

Hi, I'm new to the boards. My pain doc's have me on pain meds with immediate release and then one with extended release. I take the extended every 8 hours and imm every six! It seems to help with the coverage of pain

I've had RSD for into my 30th year. I can say, with certainty, that Methadone, is the ONLY medicine that has Taken the 'Burn' away! It has saved my Life! Then, Diazepam (for spasms), and once in a while 'Aleve' for, inflammation.
I used to have migraines, then, found I was diabetic, so insulin has taken care if that,

I also use Cynbalta, @ 60mb/day, I have a head injury, so a small 10mg/day of Aricept, kick my brain in a bit.

These may not work for you, and, I'm NOT a doctor, just VERY experienced with RSD, TOS, and TBI, to name a few.

But, the methadone, I couldn't live without!
I can't stress that enough, I take 60 mg/day, and it's inexpensive, about $10/Mos.
Great!

What a relief.

I also love the lidoderm patches, for where my discs are shot on my back!

Hope this helps!


Pete



Asb

Sorry you are having so much pain. My 14 year old daughter has had CRPS for 2 years now with 11 hospitalizations and every drug known to man and then some. Honestly the best thing for he was the sciatic nerve block. She has her CRPS in both of her legs, they were able to insert a cathetar into her sciatic nerve on the top of her leg and infuse medication which worked wonders, the bummer thing is that it was only for 10 days. They had a “ball like” device that held the medication and it infused by a positive pressure technique. She was able to get a “break” and went crazy with PT/OT and was about 50% better once they pulled the cathetar. Now 4 months later was need another one, which is fine, but another surgical procedure to get it inserted. Check it out and do some research on it. This may be something to helps you too!!