Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-26-2012, 05:20 PM #1
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Default Advice - CRPS/RSD Spring - Electrical injury

I am a fairly newly diagnosed case of CRPS, approx 4 mo since significant systemic symptoms. Venipuncture injury Feb 27, 2012; electrical injury to same left arm April 3, 2012.
In Feb developed hypersensitivity of left arm after painful venipuncture. End of April developed systemic neuropathic pain misfiring symptoms and noticed blotchy skin left hand. Mid May limb jerking at night began between rest & sleep state. End of June noticed mild edema in toes of both feet and shiny & blotchy skin bottom both feet. Systemic neuropathic pain misfiring continues to present.

I live in So. Calif. and am currently on gabapentin 2700 mg/day, naltrexone 13.5 mg/day, dextromethorphan SR 120 mg/day. To begin ketamine sub-lingual as needed for flares. I have done some arm physical therapy. I have good use of my hands and feet but I have limitations with my left arm and limitations of how long I can walk, without pain.

To date no doctor has done any nerve blocks, epideral injections, etc. What would be recommended to try to put this in remission? I assume more aggressive treatment should be done for me to try to stop this progression.

And are there others with this from electrical injury? I would like to connect with you. Thank you.
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Old 08-27-2012, 05:15 AM #2
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Sallysue,

Welcome to Neurotalk. Here you will meet some really good people. I am glad to have you.

May I ask who is treating you currently? Most of us have some sort of block done as first defense to this monster. Then other options such as ketamine, tdcs, scs, pain pump, etc.

In the meantime, NO ICE! you can soak in epsom salts and use heat to help relieve flares. I can also say pt can be very helpful. I have found swimming in a heated pool can help relieve some stiffness.
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GOD help me be faithful in the midst of my suffering. Alt1268
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Old 08-28-2012, 08:44 PM #3
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Thank you very much ALT. My meds were prescribed by Sajben in San Diego; she only does meds. I find that yesterday and today the meds seem to be working pretty well. I will see if that continues as I know bad pain days can appear out of nowhere. I had learned about no ice and had to tell my ptherapist not to use it on me; she was quite annoyed with my request for no ice.
I am wondering if meds continue to work pretty well, should I consider a nerve block or injection to stop this beast and bring about remission?
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