I was curious as to others experiences with any type of bone loss associated with rsd. If anybody has this problem I'd like to know the time frame and extent of damage. I'm going on month 9 of my accident and my ortho has found bone loss on my x rays. So that sparked my curiosity.
Thank you and best wishes.

my doctor noticed bone loss from my xrays only a few months after onset. it was one of the first clues, as well as the pain of course, that eventually led to the diagnosis.

Hi Morgan!

I'm kinda glad you mentioned this, because I've been wondering the same thing. When I had my first bone scan, it was two months after my initial injury, and that's when they noticed I had bone and muscle loss.

p.s.- I was 1O then.

I couldn't imagine having this at 10. There is a lot to take in with rsd. I have an ortho, pain doc, physical therapist and psychiatrist. Aggressive treatment is what they told me. But I see pictures of others rsd and theyre swollen, my hand/wrist is scronny. Sometimes it swells. But i also have muscle loss. Best of luck to all and thank you.

Osteoporosis is an acknowleged result in RSD patients, As far as I know I don't have it yet but do have severe muscle atrophy, forearm has shrunk by an 1 1/4in bicep by 2ins.

I was diagnosed when I was 12 though, and I'm 15 now. It's tough, isn't it? And I'm the same way! I see all of these pictures where it looks like there's two limbs in one, but mine's simply teeny tiny. It's confusing. I never know what to think.

Best of luck! love &hugs.

Hello RSD friend, I am new here and scanning thru. God bless you for all you have been thru at what seems to be an early age.
Yes, your suspisions are well founded. RSD was originally called Sudeks Atrophy whereas post Civil War the wounded soilders were not healing and showing great signs of Atrophy. Dr. Sudek was the first to document this problem.
I am 21 years with RSD. I had one great doctor who educated me greatly on signs and problem early on in this new life. He would mesure me from head to toe every six months. My head included seeming so silly as I had a leg and foot injury. I have a 2.3/4 inch difference in the right leg or orininal site.

I was fighting a 16 year workers comp issue and needed all the help I could get to prove the RSD. I was in the dark ages and the system did not recognize RSD as a ligitament problem.
A foot doctor measuring your head? That surely confused the court system and had to recess that hearing till all the lawyers did their homework on the Atrophy issue. IT IS REAl.

Not only of the bone but muscle, and everything else that is in there. I have been Systemic for a long time.
My hat size has even gone down since.
I am getting older but this is not just age.
God bless n keep you strong.
Peace & LUV, Andrea. RSD from MARS with L.U.V.
Lending Unity for Victory.

Hello Friend, I am new here and want to say hi and best wishes. I am in year 21 of RSD. Mine was from a sprained ankle in 1991. By 92 I lost the use of my leg. But OH yes, it was all in my head. LOL.
The first US doctor to document this atrophey was post Civil War. HIs name was Sudek. (Might not have the spelling right) Re: rsdhope. American RSD.

Your concerns are founded, it does make a whole bunch of our body parts shrink, bone & muscle.
The old saying No Pain no Gain...not applicable for RSD.
I have worked at keeping my leg going with swimming and stretching. However the size continues to decrease. Just part oh the whole spectrum.

I wish you good days and please feel free to be in touch with any questions.
God keep you strong. Peace & LUV, Andrea
RSD from Mars with L.U.V. Lending Unity for Victory.

Hi kevscar,
It's so weird that this topic came up today.I was just telling my doctor that people are noticing how thin my legs are. The left leg is thinner than the right. I usually wear long skirts so nobody sees it. I have a triple phase bone scan scheduled to see where I stand (no pun intended). Iit's no fun to see yourself change is it? We just have to warrior up. Better days ahead. Hope your day gets better. I saw your mood was not the best today

Change, i've put on 4 /12 stone last time I checked can't do the simplest exercises, only go out for Hospital/Doctors appointments because evidently I'm ultra-hypersensitive aad I am one of the ones whose wounds may never heal.
I have been fighing the UK Government since 30/10/2010 to make them do something as based on US and Dutch figures we have at least 250,000 un/misdaignosed sufferers. The first e-mail that day went to the Prime Minister and deputy PM, finally got a reply from him yesterday passing the Buck.