Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-02-2012, 12:16 AM #11
CRPStweet CRPStweet is offline
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I have symptoms of crps in all 4 limbs. After reading all these helpful posts (thanks!) & consulting with my PM doc, I got the flu shot this weekend in my best arm with a pediatric needle and used a lidocaine patch over the tiny bandage immediately after, and contine to put a fresh lido patch on each day - so far so good. I plan to do the lido patch for 2 weeks.

She told me they could use the ped needle on me as I do not have body fat on my arms (I am pretty petite). Otherwise she said the injection would not go in deep enough due to body fat.
I could not imagine getting the flu on top of all this pain!
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birchlake (10-02-2012)

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Old 10-05-2012, 01:41 PM #12
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Quote:
Originally Posted by birchlake View Post
With influenza season not to far ahead, I was just wondering if the majority of you DO get the flu shot or do NOT get the flu shot because of fear of spread of CRPS with the injection, or other reasons........

Risk vs reward dilemma.
I was told by my doc (Dr. Schwartzman) that I wasn't allowed any innoculations, included flu shot. I'm an odd case as I have CRPS, MS, and Transverse Myelitis. BUT, I know other CRPS patients without multiple neuro-diagnoses that have been given the same prescription.

I'm immuno-suppressed, and in the past 4 years (since TM onset) I've only been normal sick twice, both following travel. I no longer work, avoid crowds, use hand sanitizer religiously and ask people I'm with to share in the joy, and I wash my hands every time I enter/exit or pass a sink... and most importantly probably, I stopped touching my face and stay away completely, or keep at least a 3 foot perimeter from someone who's sick (nurse's advice).

But it sounds like there's a lot of different opinions on this subject, so the best thing is always to get 1 or 2 opinions from doctors you trust - who are treating you for CRPS.

Best,
Melanie
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ginnie (10-05-2012)
Old 10-10-2012, 03:08 PM #13
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I got a flu shot and I bruised up real bad, but the shot itself did not hurt. My doctor advised me to get one so I hopefully don't have to deal with the flu on top of RSD.
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Old 10-10-2012, 03:53 PM #14
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I go ahead and do the shot. My immune system isn't so good. I did contract the flu a number of years ago. You don't want the flu, gurantee that.... I would rather risk the shot in any case, and have less risk of that happeneing again. Took Relenza, and was sick for 6 weeks. Shot in my opinion is better. All of us are different however. ginnie
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