Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-28-2012, 09:53 AM #1
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Default Flu shot or not

With influenza season not to far ahead, I was just wondering if the majority of you DO get the flu shot or do NOT get the flu shot because of fear of spread of CRPS with the injection, or other reasons........

Risk vs reward dilemma.
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Old 08-28-2012, 10:15 AM #2
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Quote:
Originally Posted by birchlake View Post
With influenza season not to far ahead, I was just wondering if the majority of you DO get the flu shot or do NOT get the flu shot because of fear of spread of CRPS with the injection, or other reasons........

Risk vs reward dilemma.
Hey there! I have had RSD for almost 21 years now and I have gotten the flu shot for years. I have RSD in the right side of my face, both hands, left arm, left leg and right foot. Getting the flu shot and B12 shots (so far) have not bothered me. Of course I get them in the good arm

I am actually planning on getting my flu shot this evening.

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Old 08-28-2012, 01:41 PM #3
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Because of the immune system being low I would get the flu shot. I have gottent it for the past few years. (missed last year)
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GOD help me be faithful in the midst of my suffering. Alt1268
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Old 08-28-2012, 11:59 PM #4
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I would never have any injection unless it was to save life. I am one of the 7-8% whose wounds may never heal. Still see the acupuncture wounds from 19th June 2010 and I have flying ant bites from 22ndJuly last year which are never going to heal.
One US hospitals protcol states only peadatric needles must be used on RSD sufferers


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Old 08-29-2012, 05:43 PM #5
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You should be able to find the intranasal type without too much difficulty.
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Old 08-29-2012, 07:09 PM #6
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You should be able to find the intranasal type without too much difficulty.
I've thought about that. They don't recommend the flu vaccine "mist" for anybody over 50, but maybe they would make an exception for those of us that are over 50 with CRPS that don't want the injection? Something to consider...
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Old 10-05-2012, 01:41 PM #7
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Originally Posted by birchlake View Post
With influenza season not to far ahead, I was just wondering if the majority of you DO get the flu shot or do NOT get the flu shot because of fear of spread of CRPS with the injection, or other reasons........

Risk vs reward dilemma.
I was told by my doc (Dr. Schwartzman) that I wasn't allowed any innoculations, included flu shot. I'm an odd case as I have CRPS, MS, and Transverse Myelitis. BUT, I know other CRPS patients without multiple neuro-diagnoses that have been given the same prescription.

I'm immuno-suppressed, and in the past 4 years (since TM onset) I've only been normal sick twice, both following travel. I no longer work, avoid crowds, use hand sanitizer religiously and ask people I'm with to share in the joy, and I wash my hands every time I enter/exit or pass a sink... and most importantly probably, I stopped touching my face and stay away completely, or keep at least a 3 foot perimeter from someone who's sick (nurse's advice).

But it sounds like there's a lot of different opinions on this subject, so the best thing is always to get 1 or 2 opinions from doctors you trust - who are treating you for CRPS.

Best,
Melanie
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Old 10-10-2012, 03:53 PM #8
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Default Hi Birchlake

I go ahead and do the shot. My immune system isn't so good. I did contract the flu a number of years ago. You don't want the flu, gurantee that.... I would rather risk the shot in any case, and have less risk of that happeneing again. Took Relenza, and was sick for 6 weeks. Shot in my opinion is better. All of us are different however. ginnie
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