Welcome to the forum. You will get a lot of good answers from everyone here.

As far as being turned down on SSI. I got turned down on SS so many times I finally got the State Rep. involved and he helped me to get it. I sent him a letter explaining what was going on with SS and a copy of my files and I had it within one week. This might be something you think about doing.

It sounds like you are having a very rough time of it. I have the RSD in all of the places you mentioned plus so I do know what you are going through.

There will be others that will come on and give you a warm welcome and some good help soon.

Ada

Welcome to this site! It sounds like you truly need a better doctor who will deal with RSD issues, but that is easier said than done. The best information I can offer is to research all you can. There are so many links here. I have just recently files for disability, but am waiting for their big NO! But, we need to stick together, fight, research and eventually get results. Pain is so hard when it's 24/7. Hang in there!

Hi and welcome Chestermer I can't help much with your SSI as I am from Canada, but I do think you should not give up, you fight for what you need and stay informed as much as possible.. hard with brain fog ay.. but anywho hope you feel welcome here at Neurotalk Bud.

with rsd, i found that unfortunately, a good lawyer is as important as a good doctor ...... sad but true.
welcome. joan