Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 08-04-2012, 01:44 PM #1
draggenangel draggenangel is offline
New Member
 
Join Date: Aug 2012
Location: Indiana
Posts: 2
10 yr Member
draggenangel draggenangel is offline
New Member
 
Join Date: Aug 2012
Location: Indiana
Posts: 2
10 yr Member
Unhappy Rsd and Fibromalgia

Hi I am new to this site and not sure if im doing this right.I never been on a support site and actually joined.Nobody understands the pain or what I go through everyday it seems that is more painful not having anyone to talk about it with.So when i came across this site I said to myself why not try it out.

So hear goes me,I am 35yrs old and 5 in half yrs ago I fell down the stairs.I hurt my left ankle.It was huge,painful, burning basically the worst pain I felt in my life!I could not stand on it.I couldnt walk for a yr.Was going back and forth to different doctors.one would say it was broke another it was srung ,put a cast on take it off back and forth......Finally a bone specialist so me and right away diagnosed me with rsd.Finally somebody knew what was wrong!!
So then he sent me to the pain clinic.The pain dr.also diagnosed me with fibromalgia.He said that they usually go hand in hand. He gave me a pain shot in my spine.That did not help so a week later they gave me another one.I was finally able to stand on my foot!!!

Of course I had to go through physical thearapy for 6 months to learn how to walk again. Throughout the yrs.my foot of course still tightens and tingles and burns at times.Worse if I do certain things.But I can walk thank God!!

Anyways I know this is super long I do apologize.But if anyone does read this pleas continue to read because I have some questions and I was hoping that somebody could help me.I suffer from headaches especially migraines.The past yr has been worse.I had a migraine for 12 straight days it was horrible!and also my neck has been hurting really bad.The past yr I also am so sensitve to sound and light.It causes so my pain in my neck and head and the back of my eyes.It feels like shooting pains through my neck like strings being pulled different ways.
The light feels like it shoots right through my brain.The the doctors gave me catscan ,mri blood tests and they dont see nothing.I keep asking them could it be the fibromalgia or could the rsd moved to my neck or something.No real answers they just keep giving diff meds nothing seems to help.Nothing takes these headaches away.although somtimes the heating pad helps the shooting pains in my neck if I catch them in the beginning.
And how am I supposed to know if med is helping when they give me diff ones at a time?The pain dr that treated me 5 yrs ago no longer is at the hospital.I dont know what to do.It seems like none of the doctors understand fibro or rsd not even the nero I see.Can the rsd move to ur neck or head after 5 yrs??Or Is it a symthom of fibro??and are headaches and pain around eyes a symthom??
Please any advice would be helpful!Thank you
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