Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-11-2012, 08:37 PM #1
LIT LOVE LIT LOVE is offline
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I saw Hooshmand's 4 F's diet years ago and thought there was no way I could do it. It wasn't until I did some reading (and it only took a few hours on Marksdailyapple) that I figured out what was workable for me.

Yes, I miss pizza at times and will have it every couple of months, but I treat like an appetizer instead of a meal now. A piece is enough to enjoy and I'll eat protein and veggies along with.

When I first started I did a cheat day once a week.

I used to have what felt like the flu 5-10 days per month. It was totally unpredictable. My RSD is miserable enough without going through that.

And I certainly indulge in things that don't have nutritional value in them on occasion, still. But I know how to balance things better.

So much of what we're told (sold...) is a money making gimmick for some Fortune 500. Quality food is more expensive, but when you stop spending money on junk it evens out. When you stop buying processed food, you can afford wild caught salmon, and that amazing strip of organic grass fed beef...
I eat amazing, rich, quality food, and it's not "diet" food. It's just a different way of eating.

Eat butter, not margarine. Don't use vegetable or corn oil. Don't eat non or lowfat dairy, it's got more carbs and is harder for your body to process. Don't drink juice, eat fruit. If you have to have cookies, bake them from scratch, or buy with ones made from a handful of quality ingredients. Etc. Etc. Etc.

End diatribe!
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Old 09-11-2012, 10:58 PM #2
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It's only coffee and cigarettes that get me through the day. The specialist that came to my house to examine me said that under no circumstances should I try to cut down as the stress would make things even worse than they were then.
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Old 09-12-2012, 01:22 PM #3
painman2009 painman2009 is offline
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Quote:
Originally Posted by Kevscar View Post
It's only coffee and cigarettes that get me through the day. The specialist that came to my house to examine me said that under no circumstances should I try to cut down as the stress would make things even worse than they were then.
What I find humorous about all of this is you see one Doctor that says do another dont . One article that say one thing and right after that another one contradicts it.
I say remember this.. doctors are in practice of medicine.. practice is the key word here making every one a guinea pig. hows that for scary right...
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Last edited by painman2009; 09-12-2012 at 01:23 PM. Reason: spelling
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Old 09-13-2012, 02:09 AM #4
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Yeah I know the Police Medical Appeals Board refused early release of my Police Pension due to Permant Disability saying I had not followed NICE Guidelines and had the standard treatments.
No guidelines for the treatment of RSD/CRPS have ever been published in the UK and I have been willing to go further than any other UK Patient to be cured, agreed to have 5 day ketamine coma, one hospital refused to amputate while I'm awake, a second is now condsidering it There are no standard treatments every one is an experiment
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Old 09-13-2012, 04:23 AM #5
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Quote:
Originally Posted by Kevscar View Post
Yeah I know the Police Medical Appeals Board refused early release of my Police Pension due to Permant Disability saying I had not followed NICE Guidelines and had the standard treatments.
No guidelines for the treatment of RSD/CRPS have ever been published in the UK and I have been willing to go further than any other UK Patient to be cured, agreed to have 5 day ketamine coma, one hospital refused to amputate while I'm awake, a second is now condsidering it There are no standard treatments every one is an experiment
The only time amputation should be considered with RSD is if a life threatening condition such as gangrene has set in as a result of elephantiasis.

This is a good description of the issues involved.
http://www.rsdrx.com/rsdpuz4.0/puz_116.htm
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Old 09-13-2012, 09:14 PM #6
painman2009 painman2009 is offline
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Quote:
Originally Posted by Kevscar View Post
Yeah I know the Police Medical Appeals Board refused early release of my Police Pension due to Permant Disability saying I had not followed NICE Guidelines and had the standard treatments.
No guidelines for the treatment of RSD/CRPS have ever been published in the UK and I have been willing to go further than any other UK Patient to be cured, agreed to have 5 day ketamine coma, one hospital refused to amputate while I'm awake, a second is now condsidering it There are no standard treatments every one is an experiment
gotta love the pencil pushers and the bottom dollar people right..
listen kevscar. do only what you are comfortable with because you have to live with the end result. and remember that a lack of a standard treatment plan is not a plan in itself. I would question their decision and challenge their information.. be well
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Old 09-13-2012, 11:11 PM #7
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I have applied for a Judicial review of their decision. Should know next week if I;ve got it.
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