Quote:
Originally Posted by Kevscar
Yeah I know the Police Medical Appeals Board refused early release of my Police Pension due to Permant Disability saying I had not followed NICE Guidelines and had the standard treatments.
No guidelines for the treatment of RSD/CRPS have ever been published in the UK and I have been willing to go further than any other UK Patient to be cured, agreed to have 5 day ketamine coma, one hospital refused to amputate while I'm awake, a second is now condsidering it There are no standard treatments every one is an experiment
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The only time amputation should be considered with RSD is if a life threatening condition such as gangrene has set in as a result of elephantiasis.
This is a good description of the issues involved.
http://www.rsdrx.com/rsdpuz4.0/puz_116.htm