Hey Deb.

I have been away for a while too. Or, at least it has seemed that way, since what I have been doing is lurking and not posting. But, I do understand what you mean about sometimes needing a break to get yourself feeling better, and how easy it is to get overwhelmed by reading all of the posts all of the time. I think that is perfectly normal. Lord knows it happens to me (LOL, not that I am a prime example of "normal") and to other folks too (who might be more "normal" than I am, although the verdict is still out on that...ROFL).

Seriously though, I am glad to see that you are back posting. I had noticed that even though your post here has had several folks reading it, no one had yet responded to you. I know how bad that can make you feel when you have been away for a while, and no one seems to have noticed...let alone care that you are back. So..I wanted to MAKE SURE that you knew that I DID notice, and I AM GLAD that you are back!

I agree totally with you about RSD needing to have the same recognition as MS or ALS. Thing is, it seems that will not happen until someone Famous gets this. Someone that doesn't come off as crackers, that is. It makes me feel bad to say that, because it is almost like we have to hope that someone will come down and suffer with this awful thing. You know?

Anyway...I am going to end this here before I get it too much longer. LOL, that is VERY easy for me to do...and then I wind up writing novels for posts...ones that very few folks want or can sit down and read. But I DID want to make sure to tell you that I am very, VERY Glad that you are back!

((Hugs))
Jose

I wanted to say hi and welcome back to both of you. I have wondered for awile where everyone was. Of course, like you I stayed off for over a year due to having bad times and Bill getting worse. I concentrated on spending more time with him before I lost him.

Debbie, like you, I am always asking why RSD is not as noticeable to the public as MS and so many others. I get so angry when I see what RSD people go through. It's like the care we get is like a ball bouncing off of 4 walls it's going everywhere. So many different things being done for each and all of us. It's like they don't do enough research to find things that really do work for RSD. I'm thinking RSD patients must be the best guinnea pigs in the country. LOL

Jose, your post isn't as long as usual. I am so glad to see you back. I loved reading your post and having you around. I have missed you both.
Ada

Hi!

I think everyone should ask their doctor(s) their opinions on why RSD/CRPS does not get a wider press, particularly, of course, their pain dr. I don't know what good this would do, but a better understanding might help.

Nina

Hey debs

great to hear from you...

I have no idea why more people don't know about this...

can't think of what I meant to say

loads of love and hugs

Froggsyxxxxxxxxxxxxxxx