Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 09-13-2012, 07:10 PM #5
lolo217 lolo217 is offline
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Join Date: Sep 2012
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lolo217 lolo217 is offline
Junior Member
 
Join Date: Sep 2012
Posts: 18
10 yr Member
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Quote:
Originally Posted by Nanc View Post
Hi lolo! I am so sorry that you are dealing with this and that your husband doesn't get it. Like most non-RSD sufferers, he probably just doesn't understand it. If you haven't already done it, I think it would be a good idea for you to provide him with some information about RSD. I would also show him the McGill Pain Index (google it) - it has helped some of my family members understand the severity of the pain a little better. As my husband says, it really puts the pain levels in perspective.

I have had RSD for about 21 years now. I have been married 13 years and am so much worse off with it now than when I got married. Luckily my husband is more understanding, but some family and friends were not. Educating them helps. It is easy for someone not suffering from RSD to say that they wouldn't let the pain ruin their lives, they obviously do not get it and they need to be educated!

I wish you the best of luck with this.
Nanc
ty nanc i appreciate your thoughts and ty for the info on the mcgill pain index, i was feeling pretty lowly that day, we have been together 12 yrs now and hes always been great, he says ill get better, well not from what im reading! hopefully he will come around and start reading up on it. where is your rsd?
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