Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 09-18-2012, 01:40 AM #5
PhyllisJ PhyllisJ is offline
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Join Date: Jun 2011
Posts: 83
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PhyllisJ PhyllisJ is offline
Junior Member
 
Join Date: Jun 2011
Posts: 83
10 yr Member
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Quote:
Originally Posted by Indea88 View Post
Iv'e had RSD/CRPS/TOS/Brachial, Cervical Plexopathy x 17 years. My right leg and arms, hands are now breaking out in sores, look like cigarette burns. They take a long time to heal, and scar. I'm to the point that I don't want to go out in public, people look and think I'm either an addict or have something contagious, or have lepercy! I have severe pain in the areas and sometimes it shows up on my upper chest near my collarbone. For me, this by far is the worst part of this, just feeling discouraged and tired... I've been offered Ketamine, won't do it. Has anyone had relief from any type of cream? Going back to PT for my quarterly tuneup. Now this invisable disease is now visable and affecting my self concept!!
Ok I know I should know this as long as I've had RSD, but when you talk about sores and scars, are those part of your RSD or one of the other things you mentioned? The reason I ask is because I had a bunch of sores show up on my legs and arms a few months ago, then the burn, stiffness, and weakness hit those areas with a sudden rapid spread. Now sores will pop up all the time. Oh, on my face, too. I was so upset because I thought I had started "skin picking." But when I saw the backs of my legs in the mirror, there's no way I could have picked all those places and made those scars...I can't even reach half those spots. I mean, I know I would get random sores occasionally on my hand or wrist where the RSD started, but I guess I forgot that you could get sores with RSD.
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