Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-17-2012, 12:42 PM #21
ginnie ginnie is offline
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Default Dear Jimking

What new insurance.? I just got a quote for my friend who does NOT have preexisting conditions through Humanna. She is 58, a former smoker. They quoted her 1,000 per month. I don't know how much you all make, but that is so far out of reach it's funny. If there is some program my state in Florida is not awhere of?, I sure would like to know.
I never had insurance due to pre-existing conditions. This can't come fast enough to help all the folks that are in my position. I lost all two generations saved for, and now my home. I wasn't granted any insurance ever. ginnie
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Old 09-17-2012, 01:54 PM #22
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Quote:
Originally Posted by Jimking View Post
painman2009, It may be worth the effort to look at the new insurance plans available to those with pre-existing conditions. This is part of Obamacare and is available in each state. The state of NY should have a website explaining the insurance and how much it costs. But the coverage does exist now. What is not set up quite yet are the insurance exchanges which will not go into effect until 2014. The costs are different in each state. There might also be a waiting period of 60-90 days.
I calld many people in the NY social services area.. and they responded by saying that obamacare isnt until 2014. they won't make changs until they absolutely have to.. until then it is business as usual.
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"Thanks for this!" says:
ginnie (09-17-2012)
Old 09-17-2012, 01:57 PM #23
Jimking Jimking is offline
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Quote:
Originally Posted by ginnie View Post
What new insurance.? I just got a quote for my friend who does NOT have preexisting conditions through Humanna. She is 58, a former smoker. They quoted her 1,000 per month. I don't know how much you all make, but that is so far out of reach it's funny. If there is some program my state in Florida is not awhere of?, I sure would like to know.
I never had insurance due to pre-existing conditions. This can't come fast enough to help all the folks that are in my position. I lost all two generations saved for, and now my home. I wasn't granted any insurance ever. ginnie
Ginnie, it is part of the new Obama care coverage. You can not be denied coverage because of a pre-existing condition. This coverage is somewhat new but depending on the state it can costs upwards and beyond a grand a month. In 2014 the cost should come down.
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Old 09-17-2012, 02:02 PM #24
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Originally Posted by painman2009 View Post
I calld many people in the NY social services area.. and they responded by saying that obamacare isnt until 2014. they won't make changs until they absolutely have to.. until then it is business as usual.
I don't think that is correct. The full plan goes into effect in 2014 but every state by law provides pre-existing insurance coverage and I do not mean Hipaa coverage either. I know for a fact Maryland, DC and Virginia have it. Call your Congressman's office because I'm pretty damn sure you have it in NY too. Dig deeper.
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Old 09-17-2012, 03:33 PM #25
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Check this sight out.
https://www.pcip.gov/#StateInformation

It will give the info about pre condition insurance for each state. NY does seem to be a bit different but it has coverage at $340-460 per month.

http://www.healthcare.gov/law/featur...e-plan/ny.html
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Old 09-17-2012, 04:07 PM #26
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Default rsd

I've suffered from RSD since a workmans comp accident which crushed my right foot with about 2500 lbs of freigt on a manual pallet jack. It's been about 8 months since the injury. my toes are still swollen. I can't cover my foot with a blanket at night because of the pressure. I have shooting pains. redness on the foot. feels like my foot is on fire.But sometimes I feel like I'm all flushed, not just my injured foot. then sharp stabbing pains throughout the day and night. Sometimes when I'm just sitting it feels like all my toes are crossing over one another and it's very uncomfortable. but would doing a bone scan really help them determine that RSD is clearly what I have. my 3 toes 2-4th on my foot are "hammered" and when I step in water and try and put pressure down on my foot only the big toe and the ball and heel are the only things that show up. What do I do next???? Please can someone tell me if they have had the same problems??? I'm desperate to hear from anyone.
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Old 09-17-2012, 04:29 PM #27
ginnie ginnie is offline
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Default Yes Jimking

It was way to late for me. I started to go down hill 10 years ago before Obama care was a thought. Great for future patients. I am on SSDI and medicare.medicaid now. My friend cannot afford what these new available policies cost. what am I missing here? All quotes she is getting are not affordble, and this state Fla. said it does not impliment the policy changes until 2014. Humph...ginnie
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Old 09-18-2012, 04:02 PM #28
Jimking Jimking is offline
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Quote:
Originally Posted by ginnie View Post
It was way to late for me. I started to go down hill 10 years ago before Obama care was a thought. Great for future patients. I am on SSDI and medicare.medicaid now. My friend cannot afford what these new available policies cost. what am I missing here? All quotes she is getting are not affordble, and this state Fla. said it does not impliment the policy changes until 2014. Humph...ginnie
Same with my wife who was injured 10 years ago. We almost went bankrupt, would have if it wasn't for our congressman. My wife is now on Medicare too.
Are you having an issue with the link I provided? Choose the state that you want to check out rates where it says "Find PCIP coverage in your state" scroll to your state and hit the button that says "Go" I cut and pasted the info from Florida.
https://www.pcip.gov/#StateInformation



Standard Plan
Age Monthly
Premium Cost
00-18 $118
19-34 $176
35-44 $211
45-54 $270
55+ $376
Extended Plan
Age Monthly
Premium Cost
00-18 $158
19-34 $237
35-44 $284
45-54 $363
55+ $505
HSA Plan
Age Monthly
Premium Cost
00-18 $122
19-34 $183
35-44 $220
45-54 $280
55+ $390
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Old 09-18-2012, 06:28 PM #29
ginnie ginnie is offline
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Default Hi jimking

I will look up that site. If I can save just one person from having to loose all they have, it is worth the trouble to investigate. I got the runaround from more agienies than I can count. My own situation is horrible, SSDI and medicare/medicaid would not let me keep the money in a trust specifically to pay my taxes and keep me in this paid for family home. Nice HuH? After 30 years of work, I expected better. the lawyer we had knew nothing about medicare/medicaid law, as they are an entity unto themselves. I am loosing my home now, and I have no idea where I will wind up at. This wiped out what two generations saved for with 9 sugeries that I had, before I got disabiltiy. I want to help this friend of mine, not have the same thing happen to her. Thank you for the information. I will do the reseach tomorrow. ginnie
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Old 09-18-2012, 07:22 PM #30
LIT LOVE LIT LOVE is offline
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At $7200 per month Medicare and/or Medicaid is unlikely to ever pay for a compound like that.

You may want to try low dose naltrexone.

http://painsandiego.com/2009/05/26/l...altrexone-ldn/


Quote:
Originally Posted by ginnie View Post
No checking out of life. We are here for you. I run back to this site, when the blues get so bad i can't see straight. Vent, cry, don't stop the desire to get more help. I had Katemine infusions in my spine. this worked, but not permanentyly. It also didn't hurt. I hope you can find some solution. I too work to receive needed health care. I have medicare/medicaid, today i was told I would be receiving 5 bills for the 20% of my next endoscopy. well that didn't go over well, as I am loosing my home.

Hey painman, I did check with CVS. No generic for the medication I need to stop the progressin of barretts esophagus. Turned down flat from medicare part D, even with letters from the Doc. and me. CVS won't do compounds. The one pharmacy who does wanted 30$ per gram. I was ordered 240 grams, are they kidding? This is stopping me from the need of narcotics. so they would rather have me take morphine, than this compound that works? Our medical system is driving me bonkers, as it is alof of the rest of us. It is enough to make most people want to tear out the little hair we most likely have left.
I care about all of us in this situation. We all need the support of each other just to go day by day. Keep coming back shelby, vent, we will listen. In turn you will be helping us to cope the same way. Maybe we can give each other some ideas. I do care.....ginnie
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