Ok this is tough... I know.. but here it goes. Treatment is always about who has the better health care and or the money. what do you do if you dont have either??? this leads into my question and this might help others if any of us have answers!
In order for comp to approve the treatment my neurologist believes will help me, I have to pay the difference of costs as they will only pay in NY fee schedule and JOHNS HOPKIN is only accepting maryland fee schedule, and I am told that it will be significant. I was advised I should be prepared to receive a bill of up to 7-12,000 dollars.. where is that money going to come from. my question goes out to all.
Does any-one know of a charity group that can help offset this cost, and or an organization that can help fundraise for individuals that cannot afford such pricey treatments with the RSD/CRPS "issue"??
Now I have already contacted tracy at RSDSA and she is looking into it as well. I also have tried workers comp board, Advocate for disabilities, and local social services. in wihich they all said ..Im not sure but the will look into it. I also left this same question for my comp atty and liability atty.. In step I tried to find a phone # contact for the house of delegates which is directly resposible for the AMA to see if they can look into their guide lines for treatment, only to find out that nobody can find a number for them, I also sent emails to theAMA
(i do not know what I truly expect from them but why not right?)
I also have placed out feelers in the community around me to see what might pop up. but I would like to know on a more broader scale what options we as a group have.. so any information would be great and hopefully some of the better minds on this forum might be able to help make what ever answers I get be more than what it is. and as for the greater minds I men all of us as a whole.... thank you and peace and low pain to all