Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-27-2012, 05:09 PM #1
tos8 tos8 is offline
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Join Date: Sep 2009
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tos8 tos8 is offline
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Join Date: Sep 2009
Posts: 286
10 yr Member
Default Surgery?

For the past 2yrs ive had the option to have a surgery done. I devoleped RSD in both arms after bilateral first rib/scalenectomys surgery for TOS 4yrs ago. The surgery was botched and ive been screwed over since! First of all NEVER have TOS surgery, i was only 18 and nieve and didnt look up a darn thing when i should have! Ontop of all that my scapula wings (shoulder blade) it causes a great amount of pain ontop of all the other pain. I went and saw a surgoen 2yrs ago who dxed the problem and he said he could do surgery, its a HUGE surgery and it wasnt even a 50/50 chance that it would work because of the botched tos surgery or cause more problems (he was honest). I have gone back and forth ever since, its hard when you dont even have a 50% chance of it possibly not working and so ive never been able to go foward with the process of having it done. And then since last night the pain has just been soooooo bad, taking all the meds i can to try and relieve some of the pain and that still not working. And when these days happen it makes me want to call my surgoen up right now and say i want to scejule the surgery and have it done. Because this is how I see it, Ive been getting worse and worse over the last 4yrs and things just keep progressing, The TOS complications are getting worse, the RSD is getting worse and my scapula is getting worse. So if I do have the surgery and it doesnt work or complications happen, whats it really matter? Alls its doing is just speeding up the proccess a little bit more, OR the surgery could actually work wonders and I could possibly get that little bit of relief that im craving to have. I know its not very logical at all! But it does cross my mind when the pain is this bad, maybe im not thinking clearly, most likely im not. I know the RSD can spread, but its already in both arms and across my chest, so i guess it could spread more. And heck maybe the RSD would even interfere with the outcome of the surgery aswell, i dont know. I just know this option has been open and its the only option I have left to ever possibly maybe get some relief from what happend after everything from the TOS surgerys. When you go from working 50hr weeks down to 0 because of 1 stupid mistake you made thinking it was the best option, thats hard. 4yrs later and I still crave to want to work, you would think by now i would be over it. I joked the day i signed my consents for the TOS surgerys saying i was signing my life away, little did I know I actually was, in a matter of 3hrs everything that I once did I would no longer do anymore.

Whats your take on elective surgery with RSD?
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