So I watched the movie 50/50 this weekend and thought to myself how wonderful would it be to have a “center” or a place to go and be treated that was solely dedicated to treating patients with RSD. I guess there is at least one in FL, but that might as well be half way around the world, for me anyway. Heck it would just be nice to find doctors who know about RSD.

(Here comes the rant…)

So I have been without health insurance for about 20 months now. I have been self-employed for nearly 10 years and could no longer swing the premiums. I have become a part of a broken system. My husband was recently offered a job (after months of looking) that offers health insurance. I should be REAL excited about this… right?! And I was until I saw the nearly $11k per year premiums . That’s not one co-pay, Rx, or deductable. Awesome!

Let’s assume the premiums etc, were not a problem, there is still the problem of having to shop for a doctor that will work with me and do his or her best to try and help me.

My condition was very bad when I was first Dx, then kind of plateaued for many years with slowed deterioration. The disease in recent years has advanced, and I am now desperate for the new health insurance just to try and keep pain under control so perhaps I can keep moving as much as possible, as to avoid a wheelchair.

Well that’s it really, was just daydreaming about a WAY different scenario. Thanks for letting me share my random thoughts.

That amount is surely high but that cost is getting to be the norm for many. A few years ago our premium was $1800 per month, however my employer paid half of that. Through the years I learned a lot about health insurance and the way it works, pitfalls etc. My question for you Vrae, will there be an issue with "group coverage" with you having a pre-existing condition? The fact that it is group coverage opposed to independent coverage you may not have issues with the carrier but I think you will because of the lack of continuous coverage. What you may want to look into if you have issues is Health insurance offered in your State for those with existing conditions at decent rates. These plans do exist and is part of the expansion of Obamacare. Go to your states website which should help guide you to this info.