Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-22-2012, 07:48 PM #1
Freshh20 Freshh20 is offline
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Confused Rsd help

I have RSD, I am in soo much pain right now, on some websites they say not to use ice on the affected limb, is that true?
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Old 10-22-2012, 08:39 PM #2
pg2005 pg2005 is offline
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People argue about the ice thing. I never use ice because my leg is generally so cold as it is. We did use ice on my leg during PT before knowing I had CRPS.

Are you seeing a pain management doctor? They should be giving you an idea of what steps to follow next. What meds have you tried?

I was 17 when diagnosed so I know how devestating this is during your teen years. I felt like my world was crumbling. Please PM me if you ever feel like chatting about that. (I'm 25 now.)
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"Thanks for this!" says:
ginnie (10-23-2012)
Old 10-22-2012, 08:46 PM #3
Kevscar
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No Ice No Hot and cold water contrast therapy.
see picture
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File Type: jpg ice.jpg (199.3 KB, 156 views)
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Old 10-22-2012, 10:36 PM #4
reluctant@thetable reluctant@thetable is offline
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No Ice No Hot and cold water contrast therapy.
see picture
Ouch, that looks nasty!
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Old 10-23-2012, 03:38 PM #5
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Yes I am seeing a pain management doctor but not as often as I should due to bills that we can't afford. They have me on tylenol and ultram or vicodin for pain, flexeril for my muscles and voltaron for swelling. *(I know those might now be spelled correct). What really just made everything worse is that the mri showed bruised bone as well, so they want to cast me or i have to be on crutches at all times. I go to college half day and my high school he other half. I don't know how I will manage that.
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Old 10-23-2012, 07:26 PM #6
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The only thing i think alot of us do is just try and manage the pain. Unfortantly there is no cure and there is no real treatments for it. Im in my young 20s and its crap, its in both my arms, chest and neck. Im looking into diffrent things that MAYBE i could try. But for the last 4 1/2 yrs its just been a matter of managing my pain the best we can.
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Old 10-25-2012, 12:48 AM #7
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Quote:
Originally Posted by Freshh20 View Post
Yes I am seeing a pain management doctor but not as often as I should due to bills that we can't afford. They have me on tylenol and ultram or vicodin for pain, flexeril for my muscles and voltaron for swelling. *(I know those might now be spelled correct). What really just made everything worse is that the mri showed bruised bone as well, so they want to cast me or i have to be on crutches at all times. I go to college half day and my high school he other half. I don't know how I will manage that.
Look up a product called a roll about I used one for 2 weeks after ripping my calf muscle Man sure beats crutches and there is no way I would allow to cast an Area affected by CRPS.
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Old 12-12-2012, 01:06 AM #8
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Quote:
Originally Posted by Freshh20 View Post
Yes I am seeing a pain management doctor but not as often as I should due to bills that we can't afford. They have me on tylenol and ultram or vicodin for pain, flexeril for my muscles and voltaron for swelling. *(I know those might now be spelled correct). What really just made everything worse is that the mri showed bruised bone as well, so they want to cast me or i have to be on crutches at all times. I go to college half day and my high school he other half. I don't know how I will manage that.
Keep as strong as you can! Do your best to excel in school. From what I've read so far a LOT of people can have long periods of remission! I'm only almost 2 months into my "condition", and have no figured out the med treatment plan yet so I empathize with your pain! I've been to the E.R. 2x in the last month because the pain was out of control but my doctor/s couldn't see me till the following week. If you have to use crutches makes sure you are taught the proper way to use them! As well as have them be the correct height and padded!!! very important details. Id you don't have all of that right you could injure yourself after "long-term" use, and SOMETIMES injuries can make the CRPS spread!So be careful, but also know it doesn't ALWAYS spread, everyone is different and that's part if what makes this condition so hard to pin down I think. I hope you find some relief soon! and PLEASE try as hard as you can in school. I didn't, and I was well. Now I'm paying for it in spades. Working overtime for time missed from doc appts and procedures, because I can't afford the time off....i

Hope you feel "better" soon
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