Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 10-26-2012, 09:05 PM #1
CWilhite CWilhite is offline
Junior Member
 
Join Date: Sep 2012
Location: Hope, Indiana
Posts: 29
10 yr Member
CWilhite CWilhite is offline
Junior Member
 
Join Date: Sep 2012
Location: Hope, Indiana
Posts: 29
10 yr Member
Lightbulb My SCS gets too HOT!

Hi everyone,

I was wondering if anyone else has experienced any of the same issues that I have had with my SCS. I had my Medtronic SCS implanted about 5 months ago and the first few weeks were amazing, I was receiving so much relief I really thought I was out of the woods and could get back to a normal life. After a few weeks my stimulator started to act up, it would surge with so much intensity it was painful then just by standing up or shifting weight from one leg to another I would suddenly feel nothing. When I would look at my remote it would show that my unit wasn't even on! When this started, the site where the battery is also started to get extremely hot and extremely painful. The unit was also not recording my charging times correctly or at all. In the beginning I could charge for several hours at a time but as the unit when crazy, I couldn't charge as long because it got too hot too fast. Now that months have passed, my battery gets hot just from walking or sitting and the pain just keeps getting worse.

So..has anyone else experienced any of these issues with their Medtronic (or any other brand but Medtronic seems to be the worst) permanent SCS implants?[/INDENT]
CWilhite is offline   Reply With QuoteReply With Quote

advertisement
Old 10-27-2012, 12:55 PM #2
edever34 edever34 is offline
Member
 
Join Date: Mar 2009
Location: Louisville,Ky
Posts: 227
15 yr Member
edever34 edever34 is offline
Member
 
Join Date: Mar 2009
Location: Louisville,Ky
Posts: 227
15 yr Member
Default

Quote:
Originally Posted by CWilhite View Post
Hi everyone,

I was wondering if anyone else has experienced any of the same issues that I have had with my SCS. I had my Medtronic SCS implanted about 5 months ago and the first few weeks were amazing, I was receiving so much relief I really thought I was out of the woods and could get back to a normal life. After a few weeks my stimulator started to act up, it would surge with so much intensity it was painful then just by standing up or shifting weight from one leg to another I would suddenly feel nothing. When I would look at my remote it would show that my unit wasn't even on! When this started, the site where the battery is also started to get extremely hot and extremely painful. The unit was also not recording my charging times correctly or at all. In the beginning I could charge for several hours at a time but as the unit when crazy, I couldn't charge as long because it got too hot too fast. Now that months have passed, my battery gets hot just from walking or sitting and the pain just keeps getting worse.

So..has anyone else experienced any of these issues with their Medtronic (or any other brand but Medtronic seems to be the worst) permanent SCS implants?[/INDENT]
I have had my Medtronis SCS for over 4 years now and have NEVER experienced anything that you are describing. You need to contact your Medtronic Rep and/ or Doctor immediately!!!!! This is not normal. I wish you continued success with your SCS as I ahve had for many years. Fondly-Carol
edever34 is offline   Reply With QuoteReply With Quote
Old 10-27-2012, 01:24 PM #3
tkayewade tkayewade is offline
Member
 
Join Date: Jun 2012
Location: Texas!!!
Posts: 326
10 yr Member
tkayewade tkayewade is offline
Member
 
Join Date: Jun 2012
Location: Texas!!!
Posts: 326
10 yr Member
Default

I would definitely contact your doctor and/or rep. I've had mine about the same time, and that does not sound right at all! I have a St. Jude model, but I assume they are all similar. I sometimes feel a little surge when mine ramps up when being turned on from the magnet, but never like you describe! Hope all turns out well for you!!

TK
tkayewade is offline   Reply With QuoteReply With Quote
Old 10-29-2012, 10:23 PM #4
pg2005 pg2005 is offline
Junior Member
 
Join Date: Jul 2012
Posts: 54
10 yr Member
pg2005 pg2005 is offline
Junior Member
 
Join Date: Jul 2012
Posts: 54
10 yr Member
Default

When I read your post I think "infection." Definitely get in touch with your doctor if you haven't already. Clearly something, big or small, isn't quite right. Let us know how it turns out.
pg2005 is offline   Reply With QuoteReply With Quote
Old 10-30-2012, 06:12 AM #5
CWilhite CWilhite is offline
Junior Member
 
Join Date: Sep 2012
Location: Hope, Indiana
Posts: 29
10 yr Member
CWilhite CWilhite is offline
Junior Member
 
Join Date: Sep 2012
Location: Hope, Indiana
Posts: 29
10 yr Member
Default

I have seen 3 different Medtronic Reps and the surgeon who put the unit in and they all agree that there is NOTHING wrong my unit! My surgeon even accused me of lying about the issues I'm having.. =( Sadly my case is Workman's Comp one, so the help I get is limited to what they feel I deserve. I'm trying to get my unit out and I think I will once again persue alternate options for treatment.
CWilhite is offline   Reply With QuoteReply With Quote
Old 11-02-2012, 07:52 PM #6
yellow's Avatar
yellow yellow is offline
Member
 
Join Date: Sep 2011
Location: Chicago
Posts: 306
10 yr Member
yellow yellow is offline
Member
yellow's Avatar
 
Join Date: Sep 2011
Location: Chicago
Posts: 306
10 yr Member
Default

I have issues with overheating with charging, which causes me not to ever get to 3 bars, but I don't have problems with overheating any other time. I have a Boston Scientific unit, and two different times with the charging issue my rep has downloaded the data from my unit and charger and sent it to the company so they could analyze if there were any problems. Have any reps done this for you? Someone needs to take you seriously because that's not normal. Have you tried calling customer service and maybe talking to someone there?
yellow is offline   Reply With QuoteReply With Quote
Reply

Tags
rsd, spinal cord stimulator


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 08:38 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.