Thanks for the replies to this. I have been to several pain management drs, but only this one since the arthritis diagnosis. I tried to see a rheumatologist, but she wouldn't see me; said she couldn't do anything else for me. If you know of a good pain dr near Columbus, Ohio, I would appreciate the info. Thanks and soft hugs.

Tough spot to be in; I'm sure it weighs heavily on your mind. I personally have had several surgeries since diagnosis and no spread that I'm aware of. I wouldn't get anything done unless it really needed to be, but I also tend not to fret over everything.

There is a system which is being used by a couple of US doctors which they claim has been 100% succesfull in preventing flares or spreads. I am waiting for second appointment with a Professor over here to see if he is willing to use it on me.
They use a continous full sympathetic nevre block, for amputations it's from 48 hrs pre-op to 48 hrs post

Its a hard descion, but it has to be your descion to make. I had the option to have a surgery done for my left shoulder/arm/scapula and thats my worst side for RSD and I decided to not have the surgery because I didnt want the RSD to spread and then I knew if it would the surgery wouldnt be sucesful like I would want it to be. You also have to take factors into place, Like i was going to have to be braced for 2 months with no movement at all because the graft needed time to take, which is terribly bad for RSD paitents, and then I was going to have to go threw very intense PT, and I dont tolerate that. So yes i probley do live in more pain then I have to, but i didnt want to make the situation worse then it already is and that was a chance i was going to have to take and I didnt want to take it, and that was going to be on me, not my surgoen. So just go over all the factors that involve the surgery. And you decide what you think is best for yourself. I know its very hard!

I had a total hip replacement after being dx w rsd. Every day I wish I could go back and run from the surgery. I only had rsd in my foot. After the surgery I developed full body rsd. I also Have muscle wasting every where! It been about 10 years now and I don't know what I'm going to do when this one fails...so my advice is to run from surgery!

Deb

So sorry you had the spred of this cursed RSD after your hip surgery. I passed on ankle surgery, as I got lucky and had a orthopedic surgeon who said NO WAY. I have not had a flair, or spred. I sure hope for the dear person posting here, that they get the very best in advice with knowledgable people. What happened to you, could have happened to me. So many doctors just don't know enough. I hope you are OK Debbie, and have some good pain control. Thank the good Lord for NT and the dicussions we have here. ginnie