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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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04-22-2007, 03:34 AM | #1 | ||
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Does anyone else have cyanosis that comes and goes. I have lots of pain that comes and goes but I dont always have cyanosis when the pain is here. I do know that I had a nerve block done on Wed. and my right leg was ice clod to the touch and my right leg was warm. But I didnt notice any color difference. I also notice from time to time that my right leg looks shiney..... Any Ideas??
What do you think Vic?
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Dana |
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04-22-2007, 12:41 PM | #2 | ||
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Hi Dana,
Good post! I don't think I have cyanosis, or hardly - if that is possible. The back of my hand has gone a bit greyer than the other, so perhaps that's it; but I have very dry, very thin skin which is often extremely glossy. I've had RSD for 3 years, left hand and wrist, which was hottish and red until a year ago, then it started looking like it belongs to a dead person. Never goes blue, purple or black, like some people have to endure. But the palm of my hand is quite red and mottled at the base, and there are permanent red spots there - not a rash, it just looks like one, though not raised or separate in any way from the surface. Looks like the red spottiness is below the surface, sometimes it's very noticeable indeed. So...I dunno! I'm a mixture! I bet you'll find most people do have it if they've had RSD for any length of time. Thanks for posting this, all the best |
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04-22-2007, 12:49 PM | #3 | ||
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I am very new to RSD, and I am currently in the swelling, heat and redness stage. That being said I do very occasionally develop cyanosis. Usually it is after a flare of the swelling and heat recedes, I will get cyanosis, which will then go to reveal a more or less "normal" color and temperature.
Tracy |
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04-22-2007, 06:36 PM | #4 | ||
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Quote:
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Dana |
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04-22-2007, 07:32 PM | #5 | |||
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Heya
It is weird that there isn't always a correlation between pain and the degree of swelling/ colour changes. I have had RSD 5 years and I have cold RSD. My colour changes can range from bright bright red to black and encompass every colour in between - even yellowy green! My legs are dark purpler/ black most of the time (with pretty red spots and patches). It is really odd that if I'm in flare and in horrific pain then my colour changes can be close to normal... I don't know.. just wanted to say I'm as baffled as you are!!! Maybe protection has something to do with it? When I was first diagnosed with RSD I didn't know how to reduce the colour change/ swelling through use of slings, elevation, pressure bandaging etc - and that the best way to reduce the colour changes was to elevate and wiggle your fingers/ toes.... dunno... interesting thread though! ! ! Love Froggsy xxxxxxxxx |
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04-22-2007, 07:44 PM | #6 | |||
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Magnate
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The palm of my hands get mottled with pink and white when I take walks and let them hang down and swing or overuse them. My toes get a kind of a deep pink at times. Looks so wierd.
Ada |
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04-23-2007, 03:09 AM | #7 | |||
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That is one thing that I dont think I get. Sometimes my ankle will have a very light purple/blueish kinda color, but mostly the whole leg is abnormally white. Plus shiney, very shiney, even when lotion is applied. This is the legs im talking about, and also nearly no hair anymore.
I also get the cold, DEEP cold going on, and lately the right side of my stomach, side, and back are colder than then the left side. Something that concerned the ER doctor. Did have an emg done and they found no H reflex in the rt ankle, and when they did the bone scan they found osteopenia in the rt leg and hip. The skin is very sensitive to air movement, and cold water.
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04-23-2007, 07:09 AM | #8 | ||
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I just wanted to add one thing to this, regarding Vic's post.
I had ten months of lower pain levels thanks to a ketamine infusion. A lot of the time I was totally pain free, the worst I got was probably a 4/10, but that was often provoked- such as the time I burnt my rsd hand in the oven! ) It only came to an end when I got bitten by a spider on my leg and caused nerve damage (resulting in rsd spread) and that started my arm up again. And I've had over two years of no allodynia pain. Before my first infusion my kids couldn't touch my hand at all- for three years it was out of bounds. Within a few days of the infusion started my husband could hold my hand for MINUTES, and I could bang my hand and it wouldn't hurt. It's only in the past few months this has come back, and that was from my infusion in 2004! So there are some good stories out there, but unfortunately the majority are not as lucky as me. x Kate
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RSD in right arm for 13 years, right leg for 8 years, left arm since May 2013, with full body symptoms and CNS. |
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04-23-2007, 10:23 AM | #9 | |||
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Hi all--the cyanosis thing, at least for me, is "usually" associated with cold weather, or CHANGES is weather. I have recently noticed over the past year or so, however, that HOT weather aggravates the RSD as well...
So, I either have icey-cold, reddish/purple hands and arms, with a "burning pain" (like when you play in the snow, things go numb and start to thaw out), and then bright red, mottled shiney stuff going on in the palms of my hands. Sometimes, my skin feels as though it has a "sunburn". The REAL difficulty is-- it just "does it"...this can be "problematic" when being examined so BRIEFLY (as seems to be the custom), by INSURANCE docs--THEY DO NOT examine for fingernail changes, differences in skin temperature, etc., and somehow "overlook" the OBJECTIVE DOCUMENTATION of these findings by other treating physicians , as PROPERLY noted in the medical records.. However--if we all could be placed in front of an air-conditioner during one of these "exams" for about five minutes...bet things would be rather "interesting"! Again, I have often wondered why thermography isn't used as often to aid in the diagnosis of RSD/CRPS, particularly since technetium bone-scans have such a proven rate of unreliability, especially in the early stages of RSD. (50/50). And what about the "reliability" of a bone scan, when the individual has been doing either formal physical therapy or a home exercise program? USING the affected limb is what helps either RESTORE or PREVENT osteopenia from occuring...(and also helps reduce swelling, muscle atrophy). As stated elsewhere, the "symptoms" of cyanosis/ischemia ARE the skin colour changes and the temperature changes; part of the "diagnostic criteria" for RSD. Bottom line re cyanosis: Doesn't it seem like the "thermostat" is "broken" in the affected body parts?! Brokenwings |
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04-23-2007, 04:53 PM | #10 | ||
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I noticed today that right after one of my pain episodes that my leg turned a different color, light red then bluish purple, almost grey....
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