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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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i have been a member here for a few months, and i am seeing some discomfort and discontent going on here, and would like to tell you, as someone who is fairly new, what i think.
i am 54 and have had rsd for over 11 years and was an RN before the monster took over. so i have a pretty average to above average brain working here. i have read tons and tons of sites on the disease. i keep in touch with several people with rsd via e-mail and so i see the vast range of its curse. i came here for information. i read all post with information and then decide if it has any significance to me and my personal fight with rsd. i offer my own information, if i have had the same symptoms or treatments or experiences, and if i think it will help someone. i am not 'pro' anyone or 'against' anyone. i do not have time for that. i appreciate everyone's strife. i find the format hard to follow. a thread is often not a thread because people change the subject mid thread .... thus making the main purpose of the thread dormant and the question often unanswered. i would like to see the site help as many people who drop by it, and the main purpose of the site to be to help, emotionally physically and psychologically and even spiritually, each person who comes here. and i would like to keep a thread a thread and just have more threads .... we are all here for the same reason, and i believe the frustration and anger of rsd, which are so real and so raw, sometimes get in the way of supporting each other. peace, joan |
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