Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 12-11-2012, 08:56 PM #1
CRPSsongbird CRPSsongbird is offline
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Oh yes the trips to the er 1st one was recommended by 1 of my doc's as no one could see me and the urgent cares in my areas don't "treat pain". so in both cases I was forced to the E.R. And I wpuld explain taht to my doctor as well. I have tried Neurontin it's generic form is Gabapentin, and the side effets for me were horrendous.
And unfortunately I have showed him information. And he has gone to 1 appt where they put lidocain patches on. I still can't believe he said he was upset because "what if" something really bad happened to him how is he supposed tpo take care of me?......he doesn't seem to get it that something REALLY bad has already happened to ME. But then he has said this was my fault in the first place. Said that if I hadn't been in the E.R. it wouldn't have happened........

I think this is close to over. I need someone who can support, love, and take care of me when I need it the most. He seems to either no9t get how bad this is or is pretending it isn't. Either that or his video games and online friends are truly more important to him.....this is seriously the last thing I needed. I don't even have enought money to move out if I wanted to..
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Old 12-11-2012, 09:56 PM #2
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I wear a lido patch and it's awesome. But on the expensive side I thought.
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Rsd type 2
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Old 12-12-2012, 03:39 AM #3
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Make him watch youtube, my video is THe RSD Fighters Anthem and there are many others, if his attitude doesn't change then you are better off without him
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Old 12-14-2012, 12:51 PM #4
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Default Now taking Lyrica...so far so good

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Default I stated taking lyrica last night.....holy cow...
Whoa.....I didn't sleep last night as much as I became comatose!!!! lol . My body obviously needed it. However I had an EXTREMELY hard time waking up. I didn't hear my alarm once . My Fiance had to shake me awake!! I searched and found that a very common symptom though. And it took a good 2 hours before I was fully functional! But with that the Amitripyline and the Oxycondone I can actually type without pain!!!!!!! Lets hope the Lyrica will build up and I won't have to take the narcotic anymore too! Though If I still need it I hope they wont have an Issue prescribing it for me you know how they get when you say something like that.....but for the first time in months I now can work without being in agony...it's just slightly achy though I still get "stabbing" it's not nearly as bad!


So my hope is the nerve block will work and just make this nastiness go AWAY!!!
It might not but I hoping with a more positive attitude it will help. I just have to find someway to make myself wake up better !! lol
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Old 12-14-2012, 04:07 PM #5
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Quote:
Originally Posted by EMILY ANDERSON View Post
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Join Date: Nov 2012
Location: SPOKANE, WA
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Default I stated taking lyrica last night.....holy cow...
Whoa.....I didn't sleep last night as much as I became comatose!!!! lol . My body obviously needed it. However I had an EXTREMELY hard time waking up. I didn't hear my alarm once . My Fiance had to shake me awake!! I searched and found that a very common symptom though. And it took a good 2 hours before I was fully functional! But with that the Amitripyline and the Oxycondone I can actually type without pain!!!!!!! Lets hope the Lyrica will build up and I won't have to take the narcotic anymore too! Though If I still need it I hope they wont have an Issue prescribing it for me you know how they get when you say something like that.....but for the first time in months I now can work without being in agony...it's just slightly achy though I still get "stabbing" it's not nearly as bad!


So my hope is the nerve block will work and just make this nastiness go AWAY!!!
It might not but I hoping with a more positive attitude it will help. I just have to find someway to make myself wake up better !! lol
Coffee?
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Old 12-14-2012, 04:37 PM #6
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[QUOTE=Jimking;939560]Coffee? [/QUOTE
I already drink a ton. and once i wake up (so far i've only had it 1x) I 'm ok it getting out of bed!! lol I did start to have this burning pain on my skin from wind...woo hoo but hopefully it wont go out of control. Also my arm is turning red but its not cold ...its hot? I didnt think it got hot I just thought it was icy...and even though I had relief earlier its going through the meds more now....well at least I had energetic morning
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Old 12-14-2012, 05:31 PM #7
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Coffee is not good for RSD...

You might want to research Hooshmand's 4 F's diet for RSD.
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