Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-31-2012, 09:55 PM #11
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http://www.frenchbulldogrescue.org/h...available.html

They are known as a good dog for the elderly or disabled.
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Old 01-01-2013, 03:19 PM #12
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Nope I dont date. I cant when they dont understand why i have to cancel any plans suddenly. Or why i can only do certian things if we would do somthing. Or when they ask me why im not working or going to school and I have to tell them why. And the biggest thing is they dont understand my condition and then they run off. So no i dont plan on getting married and I know i can live a good single life and can still have children if I want. But for now im good and content with my life.
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Old 01-01-2013, 04:01 PM #13
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I've been with my boyfriend for almost 10 years now and have had RSD for about 4 years. We live together and I feel terribly lucky to have had him with me through all of this. I can't really imagine what it would be like to START a relationship when you have RSD...but being in one has been one of my many motivations to push myself to get better treatment and get my life back. My boyfriend has been incredibly supportive and helped me keep focus when it would have been so easy to give up (as it often is when things get really bad).

I've never done it myself...but have you considered the option of online dating? If I wasn't with some one then that's probably what I would do. Traditional dating scenes are not and never were my thing. Getting to know someone online, over the phone, and then setting up dates at time that work for you instead of being locked into the idea of night time dates would probably be the best way to try and work things out...if it were me. Everyone's different though...so if dating is something that you want to try and do then figure out what you are most comfortable with. Even just getting out and socializing with a club/church group or with some friends or volunteering to help at a charity event or something (whatever interests you) could be good for you and who knows...you could meet someone that way too.

I can tell you that when my boyfriend touches me I can tolerate it better than most other things. He's very gentle and conscious of things that flare up my pain as well. He never pushes when I have a bad day or don't feel up to something...whether that's in regard to touching or going out and doing things. We live a pretty quiet life and don't tend to go out that often actually...but it's easier at home with just the two of us (plus the dog). Usually we would rather stay in and watch movies than go out to the theater (it's so darn expensive anyway) and since going on the 4 Fs diet it's usually easier to cook at home as well.

Good luck to you.
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Old 01-01-2013, 08:33 PM #14
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Catra is banned from the RSD vacay.
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Old 01-01-2013, 09:23 PM #15
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Quote:
Originally Posted by LIT LOVE View Post
Catra is banned from the RSD vacay.
Awww...have fun without me.
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Old 01-18-2013, 01:56 AM #16
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Catra you have an ideal relationship it sounds like and it doesn't matter if you are married or in a long term dating relationship!

Married people with RSD would have a hard time saying their significant other is as supportive as your S.O. appears to be Catra!

Then there are those who are in a relationship that is limping along because of the disability-%^&*-storm CRPS has caused to the relationship. A boyfriend who won't read about CRPS, a fiance' who says why isn't dinner on time, the pain is in your head why are you on medication, the parents who say you should pull yourselves up by the bootstraps...most of us are not blessed with perfectly behaving support systems and there are varying degrees of support and understanding.
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Old 01-18-2013, 08:49 PM #17
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Can I get in on the RSD vaca/possible dating service if I am still married but working on seperating/divorcing ? We are trying to stay in our house for another year until my youngest son graduates from high school.

If I can afford a small house on Cape Cod with a hot tub or swim spa, you can all come visit !

Someday, I'd love to be in a loving relationship. I wonder how that will be possible, with getting through dating. I can only manage make up and shaving the legs every few weeks, so I guess I wouldn't be dating too frequently.....
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Gee, this looks like a great place to sit and have a picnic with my yummy bone !
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Old 01-19-2013, 02:09 AM #18
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Quote:
Originally Posted by NerPain4 View Post
Catra you have an ideal relationship it sounds like and it doesn't matter if you are married or in a long term dating relationship!

Married people with RSD would have a hard time saying their significant other is as supportive as your S.O. appears to be Catra!

Then there are those who are in a relationship that is limping along because of the disability-%^&*-storm CRPS has caused to the relationship. A boyfriend who won't read about CRPS, a fiance' who says why isn't dinner on time, the pain is in your head why are you on medication, the parents who say you should pull yourselves up by the bootstraps...most of us are not blessed with perfectly behaving support systems and there are varying degrees of support and understanding.
Thanks. I feel very very blessed to have him and his family in my life. I've had my share of people who are just jerks and don't understand nor so they want to understand...but thankfully none of those are people who really matter in my life and mostly just people at work (and not in my current location either so thank the lord for small miracles). I really feel for those who don't have that support at home and from those they care about...I cannot imagine how bad things would be for me right now if I didn't have my boyfriend and his family to help support me like they did/do. It kept me sane and kept me fighting. I wish everyone had that kind of support from those close to them.
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Old 01-25-2013, 12:24 AM #19
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For myself, given that I have celiac disease and gluten ataxia and lots of "other stuff" that gives me pain for most of my life, I've recently decided my desire to date and have a relationship shouldn't be put on hold for my health. History is showing me that my health may never really improve or if it does in one area, it's likely to be something else soon that comes crashing down. (Boy that sounded negative, eh? LOL. Just realistic I guess.)

So I'm going to try to get out and have a good, reasonable, safe, fun time. I'll invite folks to my house so I'm less stressed. I won't dump my load on my date and tell him all the details, but I will slowly ease him into understanding my daily reality as best as possible. After all, my wheelchair scares most potential dates away anyhow. If he stays despite all my health problems and is supportive and fits my other requirements, then I think that's a green light for moving forward.

Now to get a date....it's been 10 years! BA-HA-HA-HA-HA!!!!

GutsyGirl
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Old 01-25-2013, 02:39 AM #20
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Go for it
...GutsyGirl!!!
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