Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-01-2013, 09:23 PM #1
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Quote:
Originally Posted by LIT LOVE View Post
Catra is banned from the RSD vacay.
Awww...have fun without me.
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Old 01-18-2013, 01:56 AM #2
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Catra you have an ideal relationship it sounds like and it doesn't matter if you are married or in a long term dating relationship!

Married people with RSD would have a hard time saying their significant other is as supportive as your S.O. appears to be Catra!

Then there are those who are in a relationship that is limping along because of the disability-%^&*-storm CRPS has caused to the relationship. A boyfriend who won't read about CRPS, a fiance' who says why isn't dinner on time, the pain is in your head why are you on medication, the parents who say you should pull yourselves up by the bootstraps...most of us are not blessed with perfectly behaving support systems and there are varying degrees of support and understanding.
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Old 01-18-2013, 08:49 PM #3
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Can I get in on the RSD vaca/possible dating service if I am still married but working on seperating/divorcing ? We are trying to stay in our house for another year until my youngest son graduates from high school.

If I can afford a small house on Cape Cod with a hot tub or swim spa, you can all come visit !

Someday, I'd love to be in a loving relationship. I wonder how that will be possible, with getting through dating. I can only manage make up and shaving the legs every few weeks, so I guess I wouldn't be dating too frequently.....
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Gee, this looks like a great place to sit and have a picnic with my yummy bone !
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Old 01-19-2013, 02:09 AM #4
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Quote:
Originally Posted by NerPain4 View Post
Catra you have an ideal relationship it sounds like and it doesn't matter if you are married or in a long term dating relationship!

Married people with RSD would have a hard time saying their significant other is as supportive as your S.O. appears to be Catra!

Then there are those who are in a relationship that is limping along because of the disability-%^&*-storm CRPS has caused to the relationship. A boyfriend who won't read about CRPS, a fiance' who says why isn't dinner on time, the pain is in your head why are you on medication, the parents who say you should pull yourselves up by the bootstraps...most of us are not blessed with perfectly behaving support systems and there are varying degrees of support and understanding.
Thanks. I feel very very blessed to have him and his family in my life. I've had my share of people who are just jerks and don't understand nor so they want to understand...but thankfully none of those are people who really matter in my life and mostly just people at work (and not in my current location either so thank the lord for small miracles). I really feel for those who don't have that support at home and from those they care about...I cannot imagine how bad things would be for me right now if I didn't have my boyfriend and his family to help support me like they did/do. It kept me sane and kept me fighting. I wish everyone had that kind of support from those close to them.
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Old 01-27-2013, 09:57 PM #5
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Hello dear. (:

I've had this problem before too, even though I'm only a teenager. People, no matter what age, don't seem to understand. For me with my current boyfriend, I made sure that he knew about it all right away. I didn't want to keep secrets, get close with him, and end up hurt. Now not all people will understand or even try to, but if someone wants to be with you, they'll try. If they don't, then they obviously weren't worth it anyway.

Good luck!
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Old 02-03-2013, 09:45 PM #6
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Quote:
Originally Posted by lexiegirl250 View Post
My psychologist says I should get out and date. I was shocked when she said this because she knows how tired I am all of the time. By 5PM, I am ready to fall asleep. I would not mind dating again, but how do you date with RSD? How do you explain RSD to someone?
I am in the same boat! I am 29 and am dating. I just take it easy. I don't tell them I have CRPS at first. If I am feeling down I just say I hurt my ankle. If you need to cut the date short than thats ok. Just make up something. But getting out there is good for you. I have seen a better mood in myself. Dating is hard but if you just go out for fun then it takes the pressure off and you just might find that perfect match!
Angelina
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Old 02-05-2013, 05:21 AM #7
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Let's keep this fun thread going! I can now only dream about the dating I had planned to do and I had certainly expected to remarry someday. Dating not possible at all with how severe my total body CRPS pain is now. But I did have some wonderful dreams last night about dating an awesome guy, must be from reading the posts.
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Old 04-10-2013, 02:27 PM #8
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Hi Lexigirl,

I know exactly how you feel Ive been dealing w/generalized RSD for 9yrs come end of june. Having RSD in itself is draining, frustrating & stressfull to say the least but dont let it stop you from finding someone or just having fun the best advice I can give you is have fun there is really no way to explain or make someone who isnt dealing w/this personaly understand what we go thru on a daily basis. if someone care's about you enough they will want to learn as much as they can about what you have, trust me I've been there hun. My bf & I have had our up's downs & everything inbetween but the thing that really surprised the crap out of me when we 1st started dating was he looked up & learned what he could about RSD that meant alot so I wish u the best & hope this helps even just a little.
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