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-   -   Stomach issue .... rsd? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/181787-stomach-issue-rsd.html)

Vrae 01-29-2013 07:35 PM

Thank you!!
 
Thank you all so very much for all of the comments, suggestions, and as always... for all of the support! I really do appreciate it and will be mindful of all that has been said as I move forward. :wink:

alt1268 12-18-2013 06:26 PM

Sorry to bring this up, but I have been having right upper quadrant pain for 8 weeks. So dr doubled nexium, performed an endoscopy and colonoscopy. Since then. Pain is worse, lots of gas also. Ended upin er last week and started on Zantac along with nexium. Ultrasound and hidda scan show gallbladder normal. So now dr is thinking ibs and started me on bentyl. Between us I stopped taking my neurontin I'm hopes I would loose weight and I've been doing really well with my foot.
With all this being said, last night I took my 1st dose of bentyl and also took 1200 neurontin, which helped. Haven't took any neurontin today and now pain coming back.
Do u guys think this is rsd?

birchlake 12-18-2013 06:59 PM

Quote:

Originally Posted by alt1268 (Post 1037980)
Between us I stopped taking my neurontin I'm hopes I would loose weight and I've been doing really well with my foot.
With all this being said, last night I took my 1st dose of bentyl and also took 1200 neurontin, which helped. Haven't took any neurontin today and now pain coming back.

Stay on the doctor prescribed gabapentin and see how things shake out in the near future.

I'd love to be off gabapentin too but I tried that once under doctor supervision and it wasn't very long until I found out that even though gabapentin has side effects, life is MUCH better on gabapentin than off of it. And it can help prevent spread in my opinion by keeping the nervous system in check.

Are you taking at least 500 mg of vitamin C daily? That has been shown to help prevent spread as well. I personally think everyone with CRPS should be taking vitamin C. 500 mg is far from a dangerous dosage, it's inexpensive and if your body doesn't need it, it is excreted very quickly; it doesn't stay in your body long.

Good luck to you! (and all of us.....)

moosey2me 12-18-2013 07:58 PM

issues
 
Quote:

Originally Posted by Vrae (Post 943971)
Wow, so just when I think I have a grasp on my symptoms, I do not.

[a little history to get to my point] RSD started in right lower limb after discectomy L5 S1 (2004), eventually it moved to the left limb, followed by moving into my arms, hands and everywhere else you can think of. I also have felt signs of internal involvement as the lightning strikes inside places in my torso randomly too. So I know it’s everywhere.

For many months now I have been dealing with tummy issues. I have felt like I have had an issue with my gallbladder. Even had an ultrasound of my intestines / gallbladder and they tell me the gallbladder and all looks fine. But I continue to have bad indigestion, and lots of burping (sexy huh?), etc. So I have been taking antacids as needed and trying to eat well.

Now to my point. The strangest thing happened the other night. My tummy was not right, and I had eaten some soup and crackers. I felt like my digestive system had stopped after I ate and all the food was just sitting at my throat. I laid down. My RSD started a rampage. I began tremors like I wasn’t even on meds. My clothes were uncomfortable, my everything was uncomfortable. I was exhausted. My ears ringing so loud and yet I was trying to just sleep, when then I’m like “oh crap, I’m going to puke”, and so I did. The minute I was finished with this gross and violent act, it was amazing, ALL my rsd symptoms calmed WAY down. It’s like the nervous system KNEW I needed to get rid of whatever was inside me, and the closer it got to doing just that, the more severe my RSD was. This doesn’t sound like much, but I assure you it was the WILDEST (and most painful) thing ever.

The next morning and throughout the day I had bouts of diarrhea, extreme fatigue, but no more vomiting (thank God). For a moment I thought, maybe it was food poisoning or some sort of virus, but now I’m back to indigestion issues, and I am convinced one has something to do with the other.

My rsd has been seriously progressing for months now. All the joints on my right side (shoulder, hip, knee, ankle) are (what I feel) being attacked by rsd. My pain levels are increasing and it’s trying to immobilize me, and some days it succeeds.

So I am thinking maybe the rsd is causing this indigestion problem? Is it causing problems with my digestive system that I just can’t see?

On another note, in recent weeks, I have had a spot… one spot, about the size of a hand, in the lower left side shoulder blade that is like a “spot” of rsd that tingles, and gets numb, and worsens with rsd flares.

I know, without a doubt that I have full body rsd with some internal involvement; with the worst of my symptoms from the waist down.

The only med I take daily, like clockwork, is gabapentin. I take other drugs PRN.

Thoughts? Suggestions?? Thanks in advance!

I hear ya..My stomach goes crazy too..There for awhile I was on meloxicam..It helped in the beginning,but then I got terrible pains from it in my stomach..Had to stop..Now I drink gingerale and eat hard candy mints..They help a lot..I feel so bad for you...Maybe its the gab...it might be turning the other way on your stomach..You should talk to your doctor..I will pray for you..

alt1268 12-18-2013 08:18 PM

I appreciate the feedback. I am taking vitamin C. Only 1 tablet. Not sure at this moment what mg's. I hate this. But am so thankful for everyone here.

Quote:

Originally Posted by birchlake (Post 1037984)
Stay on the doctor prescribed gabapentin and see how things shake out in the near future.

I'd love to be off gabapentin too but I tried that once under doctor supervision and it wasn't very long until I found out that even though gabapentin has side effects, life is MUCH better on gabapentin than off of it. And it can help prevent spread in my opinion by keeping the nervous system in check.

Are you taking at least 500 mg of vitamin C daily? That has been shown to help prevent spread as well. I personally think everyone with CRPS should be taking vitamin C. 500 mg is far from a dangerous dosage, it's inexpensive and if your body doesn't need it, it is excreted very quickly; it doesn't stay in your body long.

Good luck to you! (and all of us.....)


alt1268 12-18-2013 08:20 PM

The bad thing about mints and candy is that they are a big no no for people with GERD and a hiatal hernia. So is carbination and straws. What a dilemina.

Quote:

Originally Posted by moosey2me (Post 1037992)
I hear ya..My stomach goes crazy too..There for awhile I was on meloxicam..It helped in the beginning,but then I got terrible pains from it in my stomach..Had to stop..Now I drink gingerale and eat hard candy mints..They help a lot..I feel so bad for you...Maybe its the gab...it might be turning the other way on your stomach..You should talk to your doctor..I will pray for you..


Vrae 12-19-2013 12:35 AM

Quote:

Originally Posted by birchlake (Post 1037984)
I'd love to be off gabapentin too but I tried that once under doctor supervision and it wasn't very long until I found out that even though gabapentin has side effects, life is MUCH better on gabapentin than off of it. .)

I'm with ya on the life is much better with it, otherwise I would never stop crying with constant electric shock and other CRPS pains. HOWEVER, I will ask the doc in Jan. if we can at least try something else for a minute and see what happens.

Vrae 12-19-2013 12:49 AM

hoping you're feeling better quick!
 
Quote:

Originally Posted by alt1268 (Post 1037980)
Sorry to bring this up, but I have been having right upper quadrant pain for 8 weeks. So dr doubled nexium, performed an endoscopy and colonoscopy. Since then. Pain is worse, lots of gas also. Ended upin er last week and started on Zantac along with nexium. Ultrasound and hidda scan show gallbladder normal. So now dr is thinking ibs and started me on bentyl. Between us I stopped taking my neurontin I'm hopes I would loose weight and I've been doing really well with my foot.
With all this being said, last night I took my 1st dose of bentyl and also took 1200 neurontin, which helped. Haven't took any neurontin today and now pain coming back.
Do u guys think this is rsd?

Hi Alt, it's good to hear from you! Don't be sorry for bringing this up. What's funny was that I had to re-read my original post and look at the date and I am saying to myself, wow, a year later and I am still dealing with these issues. As recently as getting sick like this (original post) while in San Francisco a few weeks ago. I still don't know if it's gabapentin, or crps attacking my insides. And I'm not sure hon if yours is rsd or not. This disease is soooooooooooo frustrating in that way.

I wish I had something more definitive and knowledgeable to offer. I sure hope your feeling better soon! Please let me know what happens, keep me/us posted.

AZ-Di 12-19-2013 09:22 AM

Hi Alt,
Sure wish I had a clue. I've had some of these symptoms too & thought it was due to extra Magnesium Dr. "prescribed". I never could tolerate neurontin anyway. Like most everyone here I too take at least 500 mg. vit. C daily.
So frustrating, wish I knew. :hug:

Nanc 12-19-2013 11:31 AM

Quote:

Originally Posted by alt1268 (Post 1037980)
Sorry to bring this up, but I have been having right upper quadrant pain for 8 weeks. So dr doubled nexium, performed an endoscopy and colonoscopy. Since then. Pain is worse, lots of gas also. Ended upin er last week and started on Zantac along with nexium. Ultrasound and hidda scan show gallbladder normal. So now dr is thinking ibs and started me on bentyl. Between us I stopped taking my neurontin I'm hopes I would loose weight and I've been doing really well with my foot.
With all this being said, last night I took my 1st dose of bentyl and also took 1200 neurontin, which helped. Haven't took any neurontin today and now pain coming back.
Do u guys think this is rsd?

Hi Alt! It is so nice to see you, but sorry for the reason! I really do not have much to offer. It is so hard to say if it is RSD or IBS. I know the doctors default to IBS when they cannot figure it out....been there! I would say if the nneurontin is helping your pain, then keep taking it. That is unless the side effects are too bad to deal with. I cannot take it or anything else like it to help my pain and I really wish I could as I need some relief.

I cannot take Vit C either. I was recently diagnosed with interstitial cystitis (IC) and supplements irritate my bladder, specifically vit C. From what I have read, IBS is common with IC. My PM dr thought it was RSD in my bladder, but it isn't. I also read that IC is common with RSD patients...all I know is that it is painful and another incurable condition in which I can't take the meds for it either :(

Sorry to go on about myself :rolleyes: I hope you can get some answers and relief soon!

Nanc
:hug:


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