NeuroTalk Support Groups - Stomach issue .... rsd?

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Stomach issue .... rsd? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/181787-stomach-issue-rsd.html)

Since getting this "oh so wonderful disorder" I've gotten gastroenteritis, and have bad bouts of diarrhea, nausea, and vomiting. I don't know why it's effecting my stomach/digestive tracked when the disorder is in my legs, but it does. This is even when I'm not on any treatment I get the stomach thing going. Just out of the blue, and eating like normal I will have to run to the restroom and vomit, and have diarrhea. It got so bad I have a specific trash can in there for it. Isn't it just wonderful what this disorder does to us?

Quote:

Originally Posted by Allanira (Post 1038376)

WE understand this very well..The pain overcomes us,which makes us sick..I usually drink small sips of gingerale and hard candy mints..Try it..I hope you feel better..Happy Holidays..

This is a regular thing since getting CRPS. It doesn't matter what I do my stomach just out of the blue will start tearing up on me.

Hi Vrae and everyone :) don't know how I've missed this thread :rolleyes: I blame a brainless CRPS duh moment...

I have had some gastro problems for ages both before CRPS and after. I had my gallbladder removed not long after my second daughter was born (10 yrs ago eek), was diagnosed coeliac about 6 years ago, and have had various issues with meds affecting my stomach. Gabapentin was the worst and most dramatic - I was very ill twice on it, sickness, diarrhoea, cramping pain, dizzy etc and the doc thought it was a stomach bug first time, second time hit less than 2 weeks later - and no one else was getting ill, I wasn't eating anything weird or different to the family. I'd had to stop the Gaba while ill because I couldn't keep a thing down, and after the second time (thought I was going to die at one horrible point :( ) we decided to stop it and see. Well I got better so fast it wasn't even funny. Scares me to think what I might have gone through if he'd insisted I persevere...

I went onto a low dose of Lyrica and it's been much better, but the last two weeks I've had that upper left shoulder blade persistent ache/pain thing almost constantly, and it's worse a few minutes after I take my tablet... I'm so scared that I've started reacting to that too. It's not awful yet, but it's getting me down, especially so close to Christmas...:rolleyes:

I need to get tougher on my diet again as it has slipped a bit recently with so much going on and me having a bad flare, but this ache hasn't happened before. I did think at one point that it was part of the CRPS aches and pains, senstivity and weirdness I've got going on in my left arm, side, chest and shoulder...but the last few days I've wondered if it's actually more gastric in nature - and reading this thread it makes more sense.

Vrae, I hope you are feeling a little better and doing ok today. You've had rough trot recently and deserve a break....as do we all!

Take care all x

Bram.

I am so frustrated. I have more pills to take then there are hours in a day. And nothing is touching the pain in my stomach. To give you an idea, within 15 min. of eating it is extremely painful in my stomach. (were my ribs split from each other) way up. Then my chest hurts, then my stomach cramps, then the nasuea, the the right side pain.

Had ultrasound, chest ct, and hidda scan. No gallbladder problems no aneruysm's. Yes had endoscopy which shows gerd and medium size hiatal hernia. This is not the same feeling as indegestion though. Had a colonoscopy, benign poyp in the cecum.

Having a stress test in January. (dr. is away for the holidays.) Pain dr. says he has not heard of abdominal rsd.
I almost went to hospital again last night. I got hungry today, ate, and now in tears from pain.l

wtf. sorry for the upset. But with my foot I could take pain meds and get some relief. I am not getting any relief with this. I need a new tummy for xmas please.:grouphug:

Alt that sounds so crazy :( I'm sorry things are so bad...

Just wanted to say hang in there, and I hope you get some kind of relief from the stomach pain soon. It's bad enough to watch every mouthful in normal times - at Christmas it is so mean. Hope you can have a few things that don't make you feel so bad.

Take care of yourself and try to enjoy Christmas as much as you can. I'll be thinking of you :)

Bram.

I've had stomach problems for a while. I think part of it is due to all the pills I take and part of it is due to the fact that I have gallstones and have had endometriosis. I rescheduled my appt with my endocrinologist (sp) for Jan 22nd to confirm. Maybe it's the meds you're taking or an ulcer. I would see a endo dr to see if they can find out. I hope you find out what it is and feel better soon.

Thank you for the kind words. I am trying to enjoy the holiday's. Lord knows I love to eat. lol. I guess it is time for a diet.

Quote:

Originally Posted by Brambledog (Post 1038697)

Hope you feel better. I had something similar. It took 3 years but just dxed with celiac. No more tummy pain or rib pain as long as I am super careful with gluten.

Quote:

Originally Posted by Vrae (Post 943971)

Wow, so just when I think I have a grasp on my symptoms, I do not.

[a little history to get to my point] RSD started in right lower limb after discectomy L5 S1 (2004), eventually it moved to the left limb, followed by moving into my arms, hands and everywhere else you can think of. I also have felt signs of internal involvement as the lightning strikes inside places in my torso randomly too. So I know it’s everywhere.

For many months now I have been dealing with tummy issues. I have felt like I have had an issue with my gallbladder. Even had an ultrasound of my intestines / gallbladder and they tell me the gallbladder and all looks fine. But I continue to have bad indigestion, and lots of burping (sexy huh?), etc. So I have been taking antacids as needed and trying to eat well.

Now to my point. The strangest thing happened the other night. My tummy was not right, and I had eaten some soup and crackers. I felt like my digestive system had stopped after I ate and all the food was just sitting at my throat. I laid down. My RSD started a rampage. I began tremors like I wasn’t even on meds. My clothes were uncomfortable, my everything was uncomfortable. I was exhausted. My ears ringing so loud and yet I was trying to just sleep, when then I’m like “oh crap, I’m going to puke”, and so I did. The minute I was finished with this gross and violent act, it was amazing, ALL my rsd symptoms calmed WAY down. It’s like the nervous system KNEW I needed to get rid of whatever was inside me, and the closer it got to doing just that, the more severe my RSD was. This doesn’t sound like much, but I assure you it was the WILDEST (and most painful) thing ever.

The next morning and throughout the day I had bouts of diarrhea, extreme fatigue, but no more vomiting (thank God). For a moment I thought, maybe it was food poisoning or some sort of virus, but now I’m back to indigestion issues, and I am convinced one has something to do with the other.

My rsd has been seriously progressing for months now. All the joints on my right side (shoulder, hip, knee, ankle) are (what I feel) being attacked by rsd. My pain levels are increasing and it’s trying to immobilize me, and some days it succeeds.

So I am thinking maybe the rsd is causing this indigestion problem? Is it causing problems with my digestive system that I just can’t see?

On another note, in recent weeks, I have had a spot… one spot, about the size of a hand, in the lower left side shoulder blade that is like a “spot” of rsd that tingles, and gets numb, and worsens with rsd flares.

I know, without a doubt that I have full body rsd with some internal involvement; with the worst of my symptoms from the waist down.

The only med I take daily, like clockwork, is gabapentin. I take other drugs PRN.

Thoughts? Suggestions?? Thanks in advance!

I read somewhere to take your antacid meds 2 hours after neurotin. Not sure where I found this but any pharmacist should be able to tell you for sure