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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Junior Member
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Me too.
I managed to get a shower stool through Occ Therapist. That helps a bit as I don't have to stand with water running down my affected leg but if I inadvertently reach for anything and a few drips of water fall from my wrist to my affected knee OMG. The shower stool lets me sort of sit/stand with my leg out of the wetting and splashing zones of the shower but the breeze of a shower!!!oh dear. I often end my very brief encounters with moving water in tears of pain. Any temperature is agony for me too. We also live in a semi-rural area on mains and as I sit here trying to write this I can here my wife screaming in response to the massive changes in water flow we get - from nothing to a blast like a water cannon. You can imagine the joy of showers for a CRPS affected body. I can't physically get into the bath. Then there is the breeze from the towel when drying the rest of the body setting of more allodynia. Even the breeze created by the water passing me on its way down to the drain is a killer. I like to be clean just like the rest of you guys but gosh this condition makes even that hellish. I'm not trying one-up-manship but people other than the RSD afflicted just don't get that such a simple thing is mind-blowing and a major task. I would love to bathe and get the pleasure from it I used too once again as I'm sure you all would. I not good in groups but I genuinely mean the following: ![]() ![]() ![]() |
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